Biography

Name

Francis

Nickname

francis

Year of Birth

1955

Gender

Female

Location

Arizona

Relationship

Caregiver

Short Bio

My husband was diagnosed with PF around June 2018. He was given prednisone but did not tolerate it well and stopped taking the med. He’s been much in denial and I’ve been trying to help but many times he rejects the help and gets irritable. He has recently seen another pulmonologist whom confirmed his diagnosis. He tells people he feels fine, but in reality I observe him getting worse. Sometimes when he was a short distance his O2 level drops to 81-88. I observe labored breathing. He’s been prescribed Esbriet for the first time and hopefully he’ll tolerate it well. Most recently he’s been complaining from internal excessive heat but no fever… has anyone experience this with PF? He gets like anxious and wants to eat cold snacks and places a bag of ice on his chest… I don’t know where is this coming from. I would appreciate   any help or information. Thank you so much for having this forum.

Type of Diagnosis

PF of known aetiology

Treatment / Medical Facility

Arizona

Current medication regimen

None yet

Lung transplantation status

to be determined

Supplemental Oxygen

no

Are you currently taking an anti-fibrotic medication?

no

How did you find us?

Other

How long have you or the person that you are caring for had PF?

2 years approximately

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