Harold, that is great news. I have a very similar situation. Do you eat your cinnamon raisin bread dry or add butter. I could use some relief as well. I’m willing to try anything after my 21/2 years of running to the bathroom. Thanks

Hi John?

I was diagnosed last year and was turned down multiple times for help. I finally found “The Assistance Fund” (tafcares.org) and was accepted after a short time on their waitlist. They pay the balance after insurance. Hope this helps. Good luck

Hi Annette,
HRCT is a high resolution CAT scan. They are diagnostic for IPF. UIP (usual interstitial pneumonitis) as seen on the HRCT confirms IPF. Idiopathic pulmonary fibrosis has no known cause, hence “idiopathic.” Mine is familiar as well. My brother was also diagnosed recently. Radiologists can differentiate between UIP vs NSIP… Read more

hi Annette,

I have been on Ofev 150 since January. I also deal with diarrhea and occasional nausea. The nausea usually passes within 15 minutes. The diarrhea, unfortunately, has gotten worse. I am still experimenting with different foods. I also just started a new clinical trial, so I’m thinking these new pills are a major factor.

My PFT and… Read more

Hi Charlene and Jean,

i was granted funding from

TAFCARES. .Org (the assistance foundation) multiple other foundations said I made too much money. Check them out online.

Hi Pauline,

I’m glad you made it through the difficulties you were having. I was diagnosed with IPF in May, 2021. I have been on Ofev since July with minimal side effects. I am currently transitioning from 100mg to 150mg twice daily. My question to you is what Medicare part D plan is covering the cost? My current plan leaves me a $3000 copay.… Read more