Hi Charlene.  It’s been a long time.  I was wondering how you are during this terrible Coronavirus.  I’ve been doing ok.  My pulmonary fibrosis is about the same as it has been.  I noticed my hands were a little blue last night.  I thought, well this is new!!  Like I said, I was thinking about you during this time.       Take care, Eleanore

Hi Charlene.  I know it’s been awhile since I wrote to you.  I’m doing pretty good.  I called cvs again and told them the doctor said to leave the prescription as is.  So I got my Ofev in a few days.  Once a day is better, but not great.  My stomach is still crazy.  I’m using Imodium multi symptom.  It’s good.  I take 2 pills before going… Read more

Hi Charlene.  So I went to the doctor on Friday and he reduced my pills to one a day.  I also started taking the new Imodium pills that can be taken 1 hour before a meal.  I use them only if we go to a restaurant or a party. What a big difference.  I feel so much better.  The only problem is when I called cvs to renew my prescription, I… Read more

Hi Charlene.  Well I’ve been on Ofev for about 3 weeks.  First week was fine.  Since week 2, not so much.  I’m going to the doctor on Friday.  I’m going to see if I could take Ofev once a day instead of twice.  Hopefully he says yes.  I’m so miserable.  I’m taking Imodium almost every day.                                     How are you… Read more

Hi Charlene.  Well I’m on Ofev for 1 week.  So far so good.  I’ve been reading all of the emails sent to the pulmonary fibrosis news.  Very interesting and many helpful hints.  I’m amazed to see how many people have this.  I never heard of it til my diagnosis.  Also when people hear what I have, I have to explain it to them what it is.  Hope… Read more

Hi Katie.  So nice to hear from you.  The flu was tough.  But I had my flu shot so it wasn’t terrible.  My husband had it at the same time I did and he was so much sicker than me.  My doctor just put me on Ofev.  Hopefully the progress of my pulmonary fibrosis will slow down.  Who knows??  Keep in touch.  Eleanore

Hi Charlene.  Thanks so much for your quick response about Ofev.  I should get it in the mail today.  I’m looking forward to starting.  I tolerate meds pretty well but I will definitely follow all directions.  I’ve been reading as much as I can. I also read a lot on the forum.    I hope it helps me with my breathing.  My cough has improved… Read more

Hi Charlene.  I’m finally getting Ofev.  I know you are taking Ofev and I just want to know how you are on it.  How do you feel?  I’m anxious to get started.  The person  at the breathers club in valley hospital who runs the meeting told me about stomach upset.  I can deal with that I think!!!!!  I’m the only one at that meeting who has… Read more

Hi Charlene.  I didn’t realize how challenging a shower could be.  Now I’m in and out.  I suds up and rinse off.  I try to breathe normally.  I thought it was just me.  This IPF stinks.  I took a Zumba class for seniors today, and it’s funny how my friends keep an eye on me.  I was never weak like this.  I’ve always been so healthy.  I… Read more

Hi Charlene.  Always nice to hear from you. Hopefully you’re not sick.  Do you run to the doctor immediately?  I’ve learned my lesson. Sick is really sick now.  Plus I’m afraid of getting pneumonia.  I had the shot, but who knows.                                                                   The gym.  I belong to Golds. It’s very good.   I’m… Read more

Good morning Charlene.  Just want to say Hi.  Still coughing from the flu (maybe) or from the IPF (probably).  I’ve been getting out quite a bit.  Going to the gym today.  Third time this week.  After my diagnosis, I was ready to quit, but then my doctor told me I had to go back.  It does make me feel better.  It’s nice to see my friends… Read more

Hi Charlene.  Well the flu is done and we’re feeling much better.  Going to yoga today.  I’ve read you email a few times.  Our experience was similar when we had our diagnosis.  I had been coughing for almost a year, so everyone I know wanted to know my diagnosis.  That was this past October.  It was just so hard letting people know how sick I… Read more

Hi Charlene.  So nice to hear from you.  When I was first diagnosed I was so scared and depressed.  I never even heard of this disease.  Then to read that you are working made me feel so much better.  I’m 71 and the only thing I’ve ever had is dry eye.  So this made me so upset.  I also have asthma.  I don’t have a lot of scar tissue, but… Read more

This is all new to me .  My grandson had a cold and couldn’t go to school.  Because we babysit, he was brought to my house and he stayed in a room away from my husband and I.  After his mom got him she brought him to the doctor and he had the flu.  So now, we both got the flu and we are both really sick.  We went to the doctor.  Then I told… Read more