[eleanore-dangelo]

Hi Charlene.  It’s been a long time.  I was wondering how you are during this terrible Coronavirus.  I’ve been doing ok.  My pulmonary fibrosis is about the same as it has been.  I noticed my hands were a little blue last night.  I thought, well this is new!!  Like I said, I was thinking about you during this time.       Take care, Eleanore

[eleanore-dangelo]

Hi Charlene.  I know it’s been awhile since I wrote to you.  I’m doing pretty good.  I called cvs again and told them the doctor said to leave the prescription as is.  So I got my Ofev in a few days.  Once a day is better, but not great.  My stomach is still crazy.  I’m using Imodium multi symptom.  It’s good.  I take 2 pills before going out to eat and it works.  I hate living like this.  I keep telling myself that everyone has something!!!!                       How are you feeling?  Spring time is another challenge.  Do you cough more?  I do sometimes.  I was at my grandsons birthday party last Saturday and we were outside all day so of course I slept 2 hours on Sunday.  Who knows!!     Well take care.  Keep in touch.  Eleanore

[eleanore-dangelo]

Hi Charlene.  So I went to the doctor on Friday and he reduced my pills to one a day.  I also started taking the new Imodium pills that can be taken 1 hour before a meal.  I use them only if we go to a restaurant or a party. What a big difference.  I feel so much better.  The only problem is when I called cvs to renew my prescription, I mentioned I would only be taking one a day.  She wouldn’t fill my prescription, so I had to call the doctor to give me a new prescription.  I hope it goes fast because I only have 6 pills left.  Always something.  Are you feeling any better?  I know dizziness is scary.  Also the fatigue.  I mentioned it to my pulmonary doctor and he suggested B12 shots from my primary doctor.  I’m going into my breathers club mtg now.  Take care.  Eleanore

[eleanore-dangelo]

Hi Charlene.  Well I’ve been on Ofev for about 3 weeks.  First week was fine.  Since week 2, not so much.  I’m going to the doctor on Friday.  I’m going to see if I could take Ofev once a day instead of twice.  Hopefully he says yes.  I’m so miserable.  I’m taking Imodium almost every day.                                     How are you feeling?  Hope you had fun on your vacation.  Keep in touch.                                 Eleanore

[eleanore-dangelo]

Hi Charlene.  Well I’m on Ofev for 1 week.  So far so good.  I’ve been reading all of the emails sent to the pulmonary fibrosis news.  Very interesting and many helpful hints.  I’m amazed to see how many people have this.  I never heard of it til my diagnosis.  Also when people hear what I have, I have to explain it to them what it is.  Hope you’re ok.  Eleanore

[eleanore-dangelo]

Hi Katie.  So nice to hear from you.  The flu was tough.  But I had my flu shot so it wasn’t terrible.  My husband had it at the same time I did and he was so much sicker than me.  My doctor just put me on Ofev.  Hopefully the progress of my pulmonary fibrosis will slow down.  Who knows??  Keep in touch.  Eleanore

[eleanore-dangelo]

Hi Charlene.  Thanks so much for your quick response about Ofev.  I should get it in the mail today.  I’m looking forward to starting.  I tolerate meds pretty well but I will definitely follow all directions.  I’ve been reading as much as I can. I also read a lot on the forum.    I hope it helps me with my breathing.  My cough has improved quite a bit.  My doctor is pleased about that.  I’ll keep you posted.  Thanks again.  Eleanore

[eleanore-dangelo]

Hi Charlene.  I didn’t realize how challenging a shower could be.  Now I’m in and out.  I suds up and rinse off.  I try to breathe normally.  I thought it was just me.  This IPF stinks.  I took a Zumba class for seniors today, and it’s funny how my friends keep an eye on me.  I was never weak like this.  I’ve always been so healthy.  I digress.  Anyway,  you are always so helpful.  It’s wonderful.  Eleanore

[eleanore-dangelo]

Hi Charlene.  Always nice to hear from you. Hopefully you’re not sick.  Do you run to the doctor immediately?  I’ve learned my lesson. Sick is really sick now.  Plus I’m afraid of getting pneumonia.  I had the shot, but who knows.                                                                   The gym.  I belong to Golds. It’s very good.   I’m 71 so I take senior classes. It’s called Silver Sneakers.   Chair yoga, cardio and Zumba.  All are for seniors.  I also like to ride the stationary bike.  It’s in s movie room so the time passes quickly.  That’s what I’ll do today.  That’s about it for today.  Take care.  Eleanore

[eleanore-dangelo]

Good morning Charlene.  Just want to say Hi.  Still coughing from the flu (maybe) or from the IPF (probably).  I’ve been getting out quite a bit.  Going to the gym today.  Third time this week.  After my diagnosis, I was ready to quit, but then my doctor told me I had to go back.  It does make me feel better.  It’s nice to see my friends too.  How are you feeling?  The winter is tough.  I can’t wait for spring, but that brings the rain.  For some reason my cough gets worse in the humidity.  Crazy, crazy!!!!  I just wish this would go away, but I know it won’t.  Hope you’re feeling ok.  A friend of mine told me “ok” is great.  I have to agree.  Take care.  Breathe easy.  Ha ha.  Eleanore

[eleanore-dangelo]

Hi Charlene.  Well the flu is done and we’re feeling much better.  Going to yoga today.  I’ve read you email a few times.  Our experience was similar when we had our diagnosis.  I had been coughing for almost a year, so everyone I know wanted to know my diagnosis.  That was this past October.  It was just so hard letting people know how sick I am.  So many told me to change doctors. (Like that would change the outcome). The hardest was letting my kids know.  They are adults, but the look on their faces was heartbreaking.  I have a very good doctor.  I also have asthma.  So brio inhaler is helping with that.  My doctor is still trying to figure this out. I have s very small infiltration in my right lung top.  My lungs sound clear when they listen to them, yet this lousy infiltration is enough to hamper my breathing.  I’ve slowed down in the gym.  I don’t push myself to do extra, and the best thing is have a cleaning lady.  I read a lot and I like to color in the adult coloring books.  Sounds silly, but relaxes me especially if I’m having a tough time breathing.  Always great hearing from you.  Keep in touch.  Eleanore

[eleanore-dangelo]

Hi Charlene.  So nice to hear from you.  When I was first diagnosed I was so scared and depressed.  I never even heard of this disease.  Then to read that you are working made me feel so much better.  I’m 71 and the only thing I’ve ever had is dry eye.  So this made me so upset.  I also have asthma.  I don’t have a lot of scar tissue, but it’s just enough to make me aware that there is a pulmonary problem.  Thanks so much for answering me.        Take care, Eleanore