@gunz12345
-
Christie Patient replied to the topic Self-care: What’s Your “Happy Place” in the forum Join the Discussion: Welcome to all PF/IPF Patients 11 months, 2 weeks ago
Hi Denise @gunz12345, I also find the waves to be very calming and refreshing. I can stare at them for hours and it never gets old. I love your observation that you find the beach even more therapeutic since your diagnosis. It’s a gift when illness helps us deepen our love of or connection with something in our lives. For all the hardship it…[Read more]
-
Wendy Thompson posted an update 1 year ago
@gunz12345 hi. I’m in England. My Doctor has diagnosed PF via Long COVID. He has offered no medication and when I told him I was worried when I read the life expectancy is 3-5 years he said that because I’m in the elderly age bracket (I’m 78) my expectations will be better because it takes longer for the scar tissue to spread the older you are. I…[Read more]
-
Christie Patient replied to the topic Getting Your Affairs in Order in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 year, 7 months ago
Hi Denise @gunz12345, thanks for sharing! I am glad to hear that you also took control of getting things in order, and included your family in the process. I’m sure it is a relief to your husband and son, as it is for me to have things all sorted in advance.
You bring up a good point about accounts and corresponding passwords! Things like that…[Read more]
-
Charlene Marshall replied to the topic Vaccinated PF people and COVID 19 in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 1 year, 7 months ago
Hi @amber
I agree with Denise @gunz12345 re: a second opinion. Not saying your doctor’s isn’t correct, but its always reassuring to have a second opinion, and I know lots of patients on Cellcept or who are otherwise immunecompromised (like myself) who have taken the vaccine as the benefits outweigh the risks. Have you received it since you made…[Read more]
Hi Wendy, you’ve posted a status update, which only moderators will see. If you’d like to post this as a topic in the forums for other members to respond to, select a forum from the homepage and scroll to the bottom of the page to the textbox there. “Join the Discussion” is a good place to start. Click “home” above, or look for a list of subforu…[Read more]