Biography

Name

Barbara

Nickname

harlo

Year of Birth

1955

Gender

Female

Location

Oregon

Short Bio

In the last 5 months, my husband has been diagnosed with Nonalcoholic Fatty Liver disease, then IPF, and now short telomere syndrome. He is on an antifribotic medication.  He’s been a healthy, active person working in the field of athletics so this came out of the blue. We retired last year with lots of plans together in the years ahead.

Type of Diagnosis

IPF

Treatment / Medical Facility

Kaiser Oregon

Current medication regimen

Esbriet

Lung transplantation status

currently in evaluation process

Supplemental Oxygen

no

Are you currently taking an anti-fibrotic medication?

yes

How did you find us?

PF News Website

How long have you or the person that you are caring for had PF?

4 months

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