Pulmonary Fibrosis News Forums | i4n | Activity https://pulmonaryfibrosisnews.com/forums/members/iancaldo/activity/ Activity feed for i4n. Sat, 04 Apr 2026 16:41:21 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 c9407dd11ec85608ce413d5a8a43c235 i4n replied to the discussion The unforgiving nature of IPF in the forum PF Life: Young Adults https://pulmonaryfibrosisnews.com/forums/forums/topic/the-unforgiving-nature-of-ipf/#post-37490 Sun, 13 Oct 2024 02:31:41 -0500 Reply to The unforgiving nature of IPF

It’s the unpredictability that is really weighing me down.

]]> 7d33c165dacb5aab3a16743b3c8fbf5e i4n replied to the discussion Post-COVID ILD or IPF? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/post-covid-ild-or-ipf/#post-37319 Thu, 25 Jul 2024 23:43:06 -0500 Reply to Post-COVID ILD or IPF?

Alex,

I appreciate the reply. It appears that your wife is stable. The improvement on her PFT is truly remarkable and I am happy for both of you. Your doctors are good in closely monitoring her condition. I hope she will remain stable or even make more improvement in her lung function on her next PFT.

All the best!

Ian

]]> c2615d82bce4333f4db91212b8213a98 i4n replied to the discussion Ofev - diarrhea after some time? in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/ofev-diarrhea-after-some-time/#post-37313 Thu, 25 Jul 2024 04:19:06 -0500 Reply to Ofev - diarrhea after some time?

May I ask what made you think Ofev is not working for him? Are his test results (PFT, HRCT) worse than before taking Ofev?

]]> 88986bd8209b35176213263e84ddf1b0 i4n replied to the discussion Post-COVID ILD or IPF? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/post-covid-ild-or-ipf/#post-37312 Wed, 24 Jul 2024 23:43:20 -0500 Reply to Post-COVID ILD or IPF?

Alex,

I’m glad your wife is stable and asymptomatic. It is quite hard to differentiate IPF and PF due to Covid. They look the same in the CT scan.

So, your wife doesn’t have a final diagnosis yet? You are also waiting for her next tests to determine if the fibrosis is progressing? How long will you have to wait before her next PFT?

Ian

]]> 50f1235849faa8f5c49b3359be4de514 i4n replied to the discussion Post-COVID ILD or IPF? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/post-covid-ild-or-ipf/#post-37308 Wed, 24 Jul 2024 09:56:53 -0500 Reply to Post-COVID ILD or IPF?

Thanks again for the reply!

I’m also so happy for the results of your PFT! An increase in FVC and TLC is very remarkable! I hope the same will happen for my Dad. He will undergo pulmonary rehab for 8 weeks. I hope the exercises will help him a lot.

Are you taking anti-fibrotic medications?

Keep up the fine fight!

]]> 24b0c97275611de4c4e25c9d8f5277b1 i4n replied to the discussion Post-COVID ILD or IPF? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/post-covid-ild-or-ipf/#post-37307 Wed, 24 Jul 2024 09:51:23 -0500 Reply to Post-COVID ILD or IPF?

Update:

The doctors are convinced that the fibrosis was due to COVID infection, but they are not putting IPF aside. They want to wait for 3-6 months to see if the disease will progress before recommending anti-fibrotic medication. Do you think this is a reasonable approach? I’m afraid of losing more lung function over the course of 3-6 months…

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]]> 18dfd1e6e7eec57e1e423de72fdf4830 i4n replied to the discussion Post-COVID ILD or IPF? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/post-covid-ild-or-ipf/#post-37306 Wed, 24 Jul 2024 09:47:43 -0500 Reply to Post-COVID ILD or IPF?

Hi Mary!

Thank you for your reply. I’m so grateful to hear similar experiences after COVID. Do you take anti-fibrotic medications to slow down the progression of the lung scarring?

I’m glad you seem stable and still not on oxygen 24/7 as of this time. I hope you get good results from your next PFT. My Dad had trouble finishing the test as well…

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]]> bd072f45f986540e9eba9d54f3fe91ac i4n replied to the discussion Post-COVID ILD or IPF? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/post-covid-ild-or-ipf/#post-37301 Mon, 22 Jul 2024 12:35:46 -0500 Reply to Post-COVID ILD or IPF?

Hi Alex!

Thanks for the reply! Despite the UIP pattern, it does sound more like PCPF considering the improvement in her PFT. I believe in cases of IPF, the FVC only goes downhill.

I hope she will continue her recovery!

Ian

]]> 16418c3f9d45d8dd4a2e02bd742ddd05 i4n replied to the discussion Post-COVID ILD or IPF? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/post-covid-ild-or-ipf/#post-37296 Fri, 19 Jul 2024 23:23:35 -0500 Reply to Post-COVID ILD or IPF?

Hi Lee!

Thanks for your response! I actually found your YouTube channel before finding you here. Your determination to stay fit and healthy is truly remarkable and inspiring! I will ask my Dad to watch your videos. I actually suggested to him your acupressure technique to relieve cough.

I’m curious as to what your diagnosis is. Is it post-COVID…

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]]> c99be4c1b00379156236414fa1f069ec i4n replied to the discussion Post-COVID ILD or IPF? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/post-covid-ild-or-ipf/#post-37295 Fri, 19 Jul 2024 23:19:22 -0500 Reply to Post-COVID ILD or IPF?

Hi Alex!

Thanks for sharing your wife’s experience. I’m happy to know that she is improving! The PFT results look good. I hope she continues her recovery.

You’ve mentioned that her scans shows UIP pattern (with honeycombing). This is a typical pattern seen in patients with idiopathic pulmonary fibrosis (IPF). Did your doctors mention if this is…

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]]> 0c20247a27d4f393c94f9ac53aac7d7e i4n started the discussion Post-COVID ILD or IPF? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/post-covid-ild-or-ipf/ Mon, 15 Jul 2024 13:49:26 -0500 Post-COVID ILD or IPF?

Hello, everyone! This would be my first post here.

My name is Ian. My father who is almost 68 years old is undergoing screening for ILD.

He had COVID-19 in 2021 and was hospitalized. He received supplemental oxygen, anti-viral medication, and corticosteroids, but was never sent to the ICU. He was discharged with 3L of oxygen and was on oxygen…

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]]> f28e3b874ba566f89100362ad4949bb1 i4n became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/42767/ Mon, 15 Jul 2024 13:37:18 -0500 0