Pulmonary Fibrosis News Forums | Ida Anker | Activity https://pulmonaryfibrosisnews.com/forums/members/idaanker/activity/ Activity feed for Ida Anker. Sat, 04 Apr 2026 14:37:52 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 f06c2c7fd47ee5a2fd5fba428c9ecdd4 Ida Anker replied to the discussion Starting Ofev in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/starting-ofev/#post-30938 Wed, 02 Feb 2022 07:03:42 -0600 Reply to Starting Ofev

I was diagnosed with IPF in Oct 20, and started OFEV in jan 21. I believe the only reason why the doc reccomended OFEV over Esbriet was the number of pills daily (2 vrs 3) I think he mentioned early stage, however later on another doctor said moderate as my gas diffusion (DLCO) is at 44 % only, whilst lung capacity still 70 %. No side effect… Read more

]]> ee1c9f0a641bd8ce8901e55992f5da40 Ida Anker replied to the discussion Started Ofev...one week in now in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/started-ofev-one-week-in-now/#post-29373 Thu, 29 Jul 2021 21:01:04 -0500 Reply to Started Ofev...one week in now

Hi all, maybe this is a Q to be posted elsewhere, but just curious about rules regarding being on the transplant list abroad. In Norway you are off the list after the age of 65, and in order to be ON the list you have to be so sick that expected life time is less than 2 yrs. Sees to be different from country to country.

 

BR Ida from Norway

]]> 52bae71b74d94bc6ac587d22987c87f0 Ida Anker replied to the discussion Increased Throat Clearing in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/increased-throat-clearing/#post-27756 Thu, 18 Mar 2021 14:46:11 -0500 Reply to Increased Throat Clearing

I started Ofev in January 21 after being diagnosed with IPF in October 20.  I believe my cough has disappeared more or ledd, but the throat clearing is still there. Furthermore, dryness in the throat is also a typical symptom for me. I drink loads of water but it is still there. My next check up is schedulded to be April 19th, so a bit worried… Read more

]]> 92b2c2f60b81ed1cfd650638e187496a Ida Anker replied to the discussion Life span in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/life-span/#post-27556 Wed, 03 Mar 2021 10:34:31 -0600 Reply to Life span

Thank you Don for a wonderful, uplifting post.  I especially liked the quote “be a blessing for other”. I will try to do the same, and will keep Your Words in my heart. God bless you. Best regards, Ida

]]> f81e65d3a427ab8da7ca769600d392f1 Ida Anker replied to the discussion Life span in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/life-span/#post-27382 Fri, 19 Feb 2021 18:08:57 -0600 Reply to Life span

Thanks for asking the question Pam, and for all uplifting comments. The 3-5 year is the first information you get after being diagnosed, both online and also all information from the hospital. It`s so scary so getting balanced information is very helpful. I try to keep a positive attitude, eat properly and work out as much as I can. This… Read more

]]> 6fdfed42374314ea5a3482e37f653700 Ida Anker posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/25250/#acomment-25371 Tue, 09 Feb 2021 06:16:41 -0600 Dear Sharon, so sorry to hear that you have this awfull diagnose aswell. I’m on week 5 With Ofev, and happily still no side effects. Lung transplant is currently no issue for me, as the Doctor says I’m to healthy at the moment. DO you have less lunge capacity? I’m currently at 70 % and doing well except climbing hills. Lets stay in touch. … Read more

In reply to - Ida Anker became a registered member ]]> 7240b76bb9cf6215aa8255ac9633a58c Ida Anker posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/25250/#acomment-25256 Tue, 02 Feb 2021 14:07:44 -0600 Thank you so much. This is of great help to me:-)

In reply to - Ida Anker became a registered member ]]> b98c6ab8554d3800518e2f09fecd3ea3 Ida Anker replied to the discussion Ofev Users can Safely take Ofev on a Long Term Basis in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/ofev-users-can-safely-take-ofev-on-a-long-term-basis/#post-27110 Tue, 02 Feb 2021 13:50:59 -0600 Reply to Ofev Users can Safely take Ofev on a Long Term Basis

Many thanks for admitting me to the Group. I was diagnosed With IPF in Oct 20. A chock after having trouble with breathing for approx 2-3 years. I’m 61 and located in Norway. I started on OFEV 150 mg a month ago, and have not experienced any side effects yet. First liver status was good aswell. After being in chock for a month I’ve been… Read more

]]> abddb2436ac731bb7a4d95e5cf1fc6a2 Ida Anker became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/25250/ Tue, 02 Feb 2021 13:29:15 -0600 4