@jaimeluciano
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Charlene Marshall posted a new activity comment 3 months ago
Hi @jaimeluciano, nice to hear from you — thanks for the update on how you’re doing. I’m glad to hear the phlegm order has subsided, I know that can be so difficult to navigate. I know a lot of patients who are on a low dose/maintenance dose of prednisone, so I’m glad that is helping though so sorry to hear about the faster progression of IPF.…[Read more]
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Steve Dragoo replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 1 year, 1 month ago
@jaimeluciano – I sent you a response but had to edit it and then it disappeared. Hope you can see it… – Steve
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Steve Dragoo replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 1 year, 1 month ago
Hi Jamie – Just brief answer until I know more about your circumstance. About 16-17 months ago I started developing phlegm that was constant. So I did as much research as I could and discovered Serrapeptase helps many with phlegm but has been used to help heal scar tissue in the liver, no one is sure if it helps heal the lung scar…[Read more]
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Charlene Marshall replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 1 year, 1 month ago
Hello my friend, so nice to hear from you! Thanks for reaching out — many of our forum members have been on my mind amidst this COVID-19 pandemic. Thank you for this update, and I am SO thrilled you’ve found a combination that leads to better sleep for you! I know the issue with phlegm was a real struggle, so I am really happy…[Read more]
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Charlene Marshall replied to the topic Prognosis Predictions for IPF Patients in the forum Diagnosis Information and General Questions 1 year, 3 months ago
Hi Jaime,
Thanks so much for writing – I always love hearing from you! Great reminders too about outliving the prognosis of this cruel disease. I wish you and your Mother weren’t plagued with IPF but I am so glad she had 10 years, and that you continue to manage without oxygen yet. I hope this continues for you a long time!
Kindest…[Read more] -
Lorraine replied to the topic just want to share some of my experience in the forum Canadians Living with Pulmonary Fibrosis 1 year, 4 months ago
Hi Jaime:
A lot of good information and advice on this thread, and I hope it brings positive results.
I would like to add one other thing. I bought an adjustable bed a couple of years ago, prior to hip replacement surgery and find keeping my head elevated, while sleeping is an effective way to get rid of phlegm. Alternatively,…[Read more]
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Steve Dragoo replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 1 year, 9 months ago
Jaime – Happy to discuss serrapeptase with you. It has knocked out almost all phlegm. – Steve
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Steve Dragoo replied to the topic just want to share some of my experience in the forum Canadians Living with Pulmonary Fibrosis 1 year, 9 months ago
Jamie,
Serrapeptase is a dead protein dissolving enzyme so it is important not to take it around food or pills because it wastes the serra and causes the pills to dissolve faster. For those reasons I take it twice a day about 3.5 hours after breakfast and 10:30 PM. Those are the lessons I have learned in 9 + months.
I started with…[Read more]
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Steve Dragoo replied to the topic just want to share some of my experience in the forum Canadians Living with Pulmonary Fibrosis 1 year, 9 months ago
Hi Jamie and Linda,
I started taking serrapeptase 8 or 9 months ago after some research and self-testing. It is a big part of my daily regimen. Most of this has been shared elsewhere but it is important to understand a few things about serrapeptase.
Serrapeptase is measured in SU so be sure you get a pure form. I…[Read more]
