Forum Replies Created

Page 1 of 2
  • jaime-l-manriquez

    Member
    June 3, 2020 at 9:34 am in reply to: Oxygen

    hello Reshma,

    I take 02 only on exertions, it work for me quite well, i walk avery day a bit, may be a block or so, slow, got tired and quit.  Respect of your question of  steroids for your mom Its no problem, my mom also with IPF she took 20mg of PREDNISONE  every day once a day she lived more than 10 years with the deseas..In my case Im taking 10mg every day, is good for inflammation of the respiratory tract, and easys of the cough. best regards,

    Jaime

  • jaime-l-manriquez

    Member
    June 2, 2020 at 1:36 pm in reply to: Immunosuppressants & Pulmonary Fibrosis

    Hello Charlene,

    hope you are enjoying good summer weather up in Ontario, related to Immunosuppresants, should I take some? never took any,

    best regards

    Jaime

  • jaime-l-manriquez

    Member
    May 10, 2020 at 1:38 pm in reply to: New treatments

    Hola Rene , you have a very good point there, EGCG extract would be much better , In my case I take about a liter a day of China green tea, three times. Thats lots of water too which is good for us may be not enough EGCG then. How you take the  extract, its a more concentrate tea ?..Anyways I ll be alert to the comments, thanks for your reply, we ll be in touch for sure, best regarda

    JAIME

  • jaime-l-manriquez

    Member
    May 5, 2020 at 2:00 pm in reply to: EGCG Green Tea Extract

    hello falks, I m on a green tea for a week already, got it from superstore,  2 little boxes of 20 bags each, inexpensive though, about US$ 2,00 two dollars per box. Will take em all 40 and will comment, best reagrads for all of you friends, hopping something good come out for all of us from researchers on this COVID-19

    JAIME

  • jaime-l-manriquez

    Member
    May 2, 2020 at 6:50 pm in reply to: New treatments

    @renehakkenberg

    Hi Rene, As soon as I read the article , went to superstore and got myself 2 packs of 20 bags each of GREEN TEA I m on it now since 3 days, feel better, I quit coffee all together though,
    my phlegm an cough went down 30%, so will try for 10 days. best regards
    jaime

  • jaime-l-manriquez

    Member
    April 7, 2020 at 8:01 pm in reply to: New treatments

    @joehick0529

    Yes Joe you are right, we hope  something good will come out of this horrible covid-19 , hope its sooner than latter, fingers crossed so researchers take a look at the “ground glass” shape Cat scans ,best wishes for all of you folks

    Jaime

  • jaime-l-manriquez

    Member
    March 25, 2020 at 10:34 am in reply to: Starting Ofev

    Hello @steve-dragoo

    Thanks for your offer, woul like tu discuss with you about serrapetase, I´ll be alert to yours comments

    thanks , best regards

    jaime

  • jaime-l-manriquez

    Member
    March 23, 2020 at 11:40 am in reply to: Starting Ofev

    Hello Charlene,

    long time no talk, hope you are well ,  In my case can t complaint, doing quite ok with the Phlegm at nites, I discover myself with the combination of two medications …bingo…., sleep 9 hrs. and no phlegm during nite….for our fellow IPFers, Mucinex syroup, and Phlemex with codeine syrup, 1 tablespoon of each  at bedtime, that s all.  Keeping away from Nintedanib(OFEV), I m doing OK   no oxigen yet, Thanks God.. Best regards for you  and our fellow writers

    JAIME

  • jaime-l-manriquez

    Member
    March 12, 2020 at 12:02 pm in reply to: Metformin (?) Status Update

    hello Kristin, yes , as Charlene said , Metformin its been tested on mice with a good outcome, in my case  i m on it for a while, 850mg a day for my diabetes ll, I have IPF since 2013, I´m  not taking any antifiobrotics, no 02 yet. I think its been good to me. ( I´m 71 )

    best regards

    jaime

  • @betty-edwards

    Hi Betty,

    I was in Crestor long time ego( 2 years) for my IPF 1 month, Gave me lots of bones and muscles pain, so I quit, in 2019 I was on atorvastatin wich is about the same , for 1 month no results, my pulmonologist precribe it for Respiratory track inflamation , did nothing on me,    Now Im  on Prednisone  5mg a day, good results…… best regards

    Jaime

  • @luker

    hi Luke,

    refering to your question, my pulmonologist presccribed me statins for the respiratory track inflamation only , Prednisone work better for me . The studies in Rats showed that metformin it might help on reversing fibrosis, not approved for humans yet…Also Azithromycin it is been tested for ipf …hope some of this  will cure this horrible desease some day. Best regards friends.

    jaime

  • jaime-l-manriquez

    Member
    February 3, 2020 at 8:41 pm in reply to: Prognosis Predictions for IPF Patients

    @jofac-ohandlin

    Hi Jofac, ……just a bit of info. I ve been aroud quite a while with this horrendus desease, passed through several pulmonologists in Canada and Chile,  I was on OFEV like you for two months, could´t put up with side effects , Statins for example they give it for inflamation of respiratory track( took it for a month did nothing on me) on the other hand , Prednisone 5mg a day work quite good on me. Metformin I take it becouse I read about it… it was succesfuly tested in rats with PF , not concluded in humans yet, I´m 71… so I said why not try it, will help control my sugar and also it migth help on IPF. so far so good. Hope for the yungsters like Charlene they live long enough to see the cure for this dreadful desease. best  regard  frieds

    jaime

     

  • jaime-l-manriquez

    Member
    February 3, 2020 at 8:41 am in reply to: Prognosis Predictions for IPF Patients

    Hi Carlene , thanks for you words, like I said to Jofac, Im sure you will benefit from the cure for IPF, I´m already too old to see that, but you never know, the cure could come any time from now,  lots researching around the globe.  All  the best for you

    jaime

  • jaime-l-manriquez

    Member
    January 30, 2020 at 4:05 pm in reply to: Prognosis Predictions for IPF Patients

    Hi Charlene , Rene and JillT, some time ago we talk about this topic. By the way, Puma Rodriguez,  he was singing live here in Santiago  last week, his case I think is exceptional, and prove that everybody is different when it comes to this horrible desease, my case for instance : diagnosed back at the end of 2012, took ofev for 2 months, couldn´t handle the side efects. Up to now , I m only on 5mg prednisone and 850mg of metformin per day, some herbs and ginger tea, no o2 yet.  Good to bring to your attention, my mother lived 10 years with the desease on Prednisone alone.  Best regards from Chile

    Jaime

  • jaime-l-manriquez

    Member
    January 7, 2020 at 10:49 am in reply to: Weather-Related PF Symptoms

    @reglois

    hello Susan,  about your cough and sleepless nites, I suffered the same, time ago, now I take a Dr, prescirption…FLEMEX with codeine syrup at bedtime (a tablespoon) , I sleep well through the nite, hope it work for you, best regards

    Jaime

  • jaime-l-manriquez

    Member
    December 27, 2019 at 5:57 pm in reply to: The Production of C02 From Various Foods We Consume

    wendy, I do exactly what you do, can ´t let my weight go down any further , so I eat normal,

    eat bread, chocolate, and pasta, rice etc. also listening to my body, I m going for the 8 th year since diagnose IPF , feeling ok since I quit ofev, no oxigen needed yet, thank God.

    best regards and a great 2020 for all of you friends

    jaime

  • jaime-l-manriquez

    Member
    December 26, 2019 at 12:01 pm in reply to: just want to share some of my experience

    Reshma. .i take FLAMEX  with codeine 3 times a day starting at bed time excellent for coughing. .hope this helps

    best regards

  • jaime-l-manriquez

    Member
    December 24, 2019 at 5:47 pm in reply to: The Production of C02 From Various Foods We Consume

    hello friends,

    CO2 .

    Im already 20 kg underweight, with no diet at all, imagine if I quit Carbs, and proteins,

    that would it be my early death sentence, thanks for he hint

    jaime

  • jaime-l-manriquez

    Member
    December 11, 2019 at 8:56 am in reply to: Weather-Related PF Symptoms

    Hello Charlene

    I think I ve  commented before about this topic, but in my case , I´m a Canadian living abroad

    Here the weather is quite mild and damp, in summer time we have around 25 c. for a few days, the rest of the year  goes from  2 to 20c  in fall and winter with lots of rain throughout the year, compared with the cold of Calgary , its much better here, cold was not to good for me..I was diagnosed IPF by the end of 2012, Im 71 years old.

  • jaime-l-manriquez

    Member
    December 11, 2019 at 8:38 am in reply to: Weather-Related PF Symptoms

    hello Charleen

    I Think I comment before about the weather afecting us, But in my case being a Canadian living abroad, in a quite mild and humid weather , compared with the cold of Calgary, here I feel much better  the season are marked very well, summers go maximun 25c a few days,    and  lots of rain throughout the year. I was diagnosed IPF back at end 2012.

    best regards

  • jaime-l-manriquez

    Member
    October 7, 2019 at 10:54 pm in reply to: Aloha from Hawaii

    Hello Charlene. what an envy, those beautiful pics, and sceneries

    ,here in Puerto Montt , only 8, quite cold…Have a great time there,

    enjoy your stay over that beautiful place…best regards from Chile

    jaime

  • jaime-l-manriquez

    Member
    September 17, 2019 at 10:47 am in reply to: air purifiers

    ( @lwaldschmidt )

    Hello Linda, I have a SAMSUNG air purifier, its a great unit have a lite to show how is the air its going through the filter ..from red to green, also have a bacteria doctor , its tells you the quality of air you are breathing, is about us$ 200.00…best regards

    jaime

  • jaime-l-manriquez

    Member
    September 6, 2019 at 12:39 pm in reply to: Medformin

    Hi Charlene, nope I have not been prescribe metformin for my IPF but Im taking it for prediabetes, mellitus 2..best regards

    jaime

  • jaime-l-manriquez

    Member
    September 3, 2019 at 12:14 pm in reply to: Medformin

    Hello everyone, METFORMIN, i m on it for quite a while 850mg une pill a day, and it seems to help ..anyways I think its worth to try, most of us if we are over 70 years old will need it anyways.. for control the pre-diabetes..best regards

Page 1 of 2