I had double lung transplant at Duke in April of 2022 and it was fabulous. They continue to follow up and the doctors and staff are great. I can do virtually anything now without oxygen and feel great. The meds are numerous but do not present many side effects so far. Ofev was much more difficult, on that for 4 or so years before I progressed to…

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Thank you all for commenting with suggestions and confirming that it is normal with IPF.  I was diagnosed in 2018 and it has now progressed to the point of full evaluation at Duke in early December to prepare for lung transplant sometime next year.

I find coughing spells every morning are part of my daily life, but not at night.  I am sleeping… Read more

Marianne,

I too was originally diagnosed with GERD because of cough.  When the endoscopy showed only mild signs of irritation they did a chest Xray and and voila, you need to see a pulmonologist and do some further testing.  That was the beginning of the answer which turned out to be IPF (no real answer after all).  I was never a smoker and… Read more

I think it is Green Tea Extract that can be purchased as capsules.  I think that is what Steve was saying helps his cough, although it claims to be helpful for other issues.  I have not seen it listed as helpful for coughs, but it seems to be relatively safe since it is green tea extract and clearly green tea is universally thought to be… Read more

Thanks for all the replies.  I guess I am not alone with the morning issues.  I am on benzanotate (Tessalon perles)  but they do not seem to be effective. I will certainly try cough drops as suggested and I guess it is just part of the condition and not indicative of further damage. It is annoying, uncomfortable, and embarrassing in COVID… Read more

I am on OFEV and my testing has been relatively steady the last 2 years, very little decline on PFT.  I can tolerate OFEV with immodium, although it is not great on the stomach.  I am on oxygen at night, but otherwise only during exercise.  I am at about 50% lung capacity so still too early for transplant.  My main issues are coughing up… Read more