Pulmonary Fibrosis News Forums | John Eames | Activity https://pulmonaryfibrosisnews.com/forums/members/jdexx/activity/ Activity feed for John Eames. Tue, 21 Apr 2026 13:38:44 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 2d427d68c3113d41d9f1e052bf197c1b John Eames replied to the discussion Saracatinib in the forum Canadians With PF https://pulmonaryfibrosisnews.com/forums/forums/topic/saracatinib/#post-35674 Fri, 18 Aug 2023 20:33:02 -0500 Reply to Saracatinib

That sounds great!  Will be looking forward to the results.

]]> a22eb029e7894e9e3a81bf34851ba4a2 John Eames replied to the discussion Saracatinib in the forum Canadians With PF https://pulmonaryfibrosisnews.com/forums/forums/topic/saracatinib/#post-35632 Wed, 16 Aug 2023 17:29:44 -0500 Reply to Saracatinib

Have been trying to find out if it is availabe by prescription but don’t think so. It is extremely expensive. $180 for 50mg pill. It is  available in India but need to research that.

]]> 343131299538f5740ed504b4219fd2cd John Eames replied to the discussion Saracatinib in the forum Canadians With PF https://pulmonaryfibrosisnews.com/forums/forums/topic/saracatinib/#post-35610 Tue, 15 Aug 2023 20:08:16 -0500 Reply to Saracatinib

It is in clinical trials and looks very promising because it not only slows the progression but reverses the scarring.

]]> 64b85025586bc01765823673838b69f3 John Eames started the discussion Saracatinib in the forum Canadians With PF https://pulmonaryfibrosisnews.com/forums/forums/topic/saracatinib/ Tue, 15 Aug 2023 18:34:32 -0500 Saracatinib

Any info on this new drug in clinical trials and was approved by FDA as an orphan drug. Reduces scarring and is better than the two currently in use.

]]> 1d7786c6a46d83dba2baec71826d274b John Eames posted an update: Does anyone have info on the new promising drug […] https://pulmonaryfibrosisnews.com/forums/activity/p/39908/ Tue, 15 Aug 2023 18:20:09 -0500 Does anyone have info on the new promising drug Saracatinib? Was designated orphan status by FDA and in clinical trials. Actually supposed to reverse the scaring.

]]> 0 d53fa1fe85352cb7f40b410728201387 John Eames replied to the discussion OFEV cost and assistance in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/ofev-cost-and-assistance/#post-33304 Tue, 18 Oct 2022 20:10:20 -0500 Reply to OFEV cost and assistance

Hi Gina

Thanks for the information. I have not pursued any other avenues re:OFEV cost/payment since my application was denied. Now Open door keeps calling me to re-apply. Don’t know if I want to go on OFEV after reading the side effects. Think I will just monitor the pulmonary function test and see what happens.

]]> ff35ce359479c6803df2b3b87d6c44ca John Eames replied to the discussion OFEV cost and assistance in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/ofev-cost-and-assistance/#post-32778 Sat, 30 Jul 2022 00:09:25 -0500 Reply to OFEV cost and assistance

Hi Ray

Thanks for the great information. I will follow up with the India lead and see what happens.

It is unconscionable to charge $3000/month for a life saving drug.

Will let you know the progress.

Thans Again

John

]]> cff9bcaf30f4842c350707e56b0a3e38 John Eames started the discussion OFEV cost and assistance in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/ofev-cost-and-assistance/ Fri, 29 Jul 2022 00:19:28 -0500 OFEV cost and assistance

Any suggestions on paying for OFEV? Diagnosed in Feb. 2022 with IPF, Insurance wants $3000.08/Mth copay for OFEV. Have applied to the BI Cares program and was rejected. Have looked at offshore suppliers and found 1800Rx with a price of $1300/Mth. Does anyone have any experiance with 1800Rx or other offshore suppliers i.e. Canada. Thanks

]]> 800021cf57adc2b9dd3e8a1a4f89773f John Eames posted an update: Any suggestions on paying for OFEV? Diagnosed in Feb. […] https://pulmonaryfibrosisnews.com/forums/activity/p/34586/ Thu, 28 Jul 2022 00:03:42 -0500 Any suggestions on paying for OFEV? Diagnosed in Feb. 2022 with IPF, Insurance wants $3000/Mth copay for OFEV. Have looked at offshore suppliers and found 1800Rx with a price of $1300/Mth. Does anyone have any experiance with 1800Rx? Thanks

]]> 1 5b5573e8153e22d9df75c1031a6487a1 John Eames became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/34546/ Tue, 26 Jul 2022 20:43:16 -0500 1