I wish I knew, thought I might find some data here
recently diagnosed ild. they are pushing for a lung biospy, scares the daylights right out of me
all that I have read leads me to think it isn’t the holy grail
Hello Donna, have they completed the high density cat scan on you? Sometimes this is all they need. I did have the biopsy and I didn’t have any complications. I was home on the third day without any pain. Everything before that was inconclusive and the biopsy reaffirmed the diagnosis of ipf. Mark
This is challenging for me to sign on and post but we’ll see if this time it works. I am a writer and have found writing down my experiences helps me “see” how I really feel about things and not how I think I am supposed to feel. When I first began to use oxygen full time, I was embarrassed to have to travel with tank and tubes but soon realized…[Read more]
Hello Sandy, thank you for commenting. Everything you do everyday is inspiring Sandy. This is a terrible disease and you have a fabulous attitude. Keep doing what you do. Enjoy your days and keep as active as your body will allow. I’m glad you figured out the writing for the page but if you have trouble again you can always ask Charlene or m…[Read more]
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