Hi. Both my pulmonologists specifically indicated I was not to use a dry sauna due to my IPF. They said it would thicken the mucus in my lungs making it harder to expel. However, they both indicated a steam sauna would be good therapy as it would thin the mucus and open the airways making it easier to expel the mucus.

Hi, I was diagnosed with IPF 2 years ago and have very significant mucus buildup in my lungs over night. I have tried various RXs and OTCs – none have worked to stop the mucus buildup. However, I have developed a very effective routine to cough it all out in the AM. I use one puff of Albuterol to fully open the larger lung passages, then…

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Hi, I hope your father is doing well. I am 70 years old and was diagnosed with IPF 2 years ago. I currently take 150mg of Ofev twice daily. There has been no progression of the scarring, but I have lost a lot of weight due to the diarrhea and loss of appetite. On the advice of my pulmonologist I am also taking B complex, vitamin D 25 mcg…

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Hi, I was diagnosed with IPF about 2 years ago and was immediately put on 150mg of Ofev twice daily. I weighed 172#s then. I steadily lost weight, but was able to stabilize at 142#s following the usual dietary advice… small frequent meals high in protein and good for you fats, protein shakes, nothing real spicy and not too many crude…

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I have been on Ofev150mg 2X daily since Oct 2022. Diarrhea was a constant problem, even when taking up to 6 immodium a day. Spicy, fatty foods and raw veggies made it worse. My Dr. finally prescribed Tincture of Opium, said it will resolve any diarrhea issue. I picked it up but never used. Amazingly the diarrhea suddenly got better and is… Read more

Yes, I have attended pulmonary rehab. I have had IPF for 18 months and have been an athlete my whole life. I am on room air and 69 years old. I thought I was in good shape, playing high level pickleball 4 days a week. PR significantly increased my cardio/pulmonary capability. I highly recommend it.

Yes, I was diagnosed with IPF 16 months ago and I am using Ofev and Symbicort daily. Albuterol has been a helpful addition when I need to exercise and on cold damp days. The nebulizer doesn’t seem to be any better than using the Albuterol inhaler.