Pulmonary Fibrosis News Forums | jim cyrus | Activity

jim cyrus replied to the discussion Optimism in the forum Using Our Forums

Sat, 04 Jan 2025 14:14:35 -0600

Cost Plus Drugs sells Pirfenidone for 135.00/ month. That is for 90 801 mg capsules. Side effects are much less than Ofev that I was on for 16 months with horrible side effects. Why the Docs still recommend Ofev first is beyond me

jim cyrus replied to the discussion New drug in the forum Research and Development

Thu, 24 Oct 2024 19:45:42 -0500

Reply to New drug

I have been in the Fibroneer study since June-July 2023. My FVC has stayed 69-70 and I am not on oxygen.. I also take Pirfenidone and have for several years I was diagnosed in July 2018. No side effects

since I have been taking the study drug or placebo.. I am looking forward to switching over to the drug soon, but no word yet from…

jim cyrus replied to the discussion End of ofev treatment in the forum Ofev (Nintedanib)

Fri, 18 Oct 2024 11:38:50 -0500

Reply to End of ofev treatment

Please try Pirfenidone. I was on Ofev and my blood pressure was off the charts and the diarrhea was awful. My doc switch me to Pirfenidone and my blood pressure went back down and I was able to get off two blood pressure meds and the diarrhea stopped. I regained the lost 30 pounds that I lost while on Ofev. I am in my sixth year of dealing…

jim cyrus became a registered member

Mon, 23 Jan 2023 14:30:40 -0600