I remember reading some of your posts. I wish you the best with your next venture with helping others.

Take Care

Jeff

Hello Charlene hope things are going well for you. I like to sleep on my left side with my upper body hugging an extra long pillow. I get my best sleep in that position but it only lasts for 2 to 3 hours. The rest of the time is spent tossing and turning with no good quality sleep.

Take Care

Jeff

Hello Charlene

Hope things are well.

I have not been to a ENT DOCTOR BUT I HAVE LOTS OF PROBLEMS WITH MY Sinuses?It seems that they are stuffed up most of the time. I will be mentioning this again to my PCP in the near future. On the rare occasion that my sinuses are open and I still have a problem breathing that is when reality hits.

Thank You…

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I was diagnosed with both as well about 1 year ago. My doctor gave me 2 inhalers for the emphysema . I don’t think they help much. I am not on medication for pulmonary fibrosis as of yet but I wish I was. From what I understand the sooner you get on the medication for PF the better you chances are to slowing down the symptoms.

Take Care

Jeff

Thank You for your insight in this matter. Will see my doctor in October and if I am still unhappy with his treatment I will be looking for a new doctor. I do think time is of the essence. The sooner you get on the correct medication the better. I am only 60 years old and in good health otherwise so maybe I could do clinical trials.

Thanks…

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Thank you for your input on this matter. I was not expecting to add 7 minutes to each mile in just one year. I am glad that I still walk and get some exercise just didn’t expect to move that much slower. I keep my breathing the same just move slower. I do not want to short change my doctor so I will see him in October and if I am still not happy…

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Thank You for your input in this matter. I do try to exercise my lungs as you said. It is a little discouraging that in one year I have added 7 minutes to one mile. I used to do 3 miles in 45 minutes now same 3 miles take me 68 minutes but I keep going to get the exercise. I am hoping they find a cure for this.

Take Care!

Thank You for your response to my post. I don’t have many opinions were I live. I have an appointment in October and if I am still not happy I will find a new pulmonologist.

Thank Again

Jeff

Thank You for responding to my post. I do hope that new drug you are on for your skin condition helps with your breathing issues in the morning. I may have to find a new pulmonologist. I have one appointment in October and will take it from there.

Thanks again.

Jeff

Hello

First time posting on here. I have read just about everything posted in the last year and do enjoy the information. I find myself somewhat confused with my current situation. I was diagnosed with PF and emphysema. I have a Spiriva inhaler along with Albuterol.I walk 3 miles 5-6 times a week. Walk inside out of the elements. One year ago…

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