Biography

Name

Joanne Hughes

Nickname

joanne-hughes

Year of Birth

1944

Gender

Female

Location

CA

Relationship

Patient

Short Bio

Diagnosis was in 2017 also found out I had lung cancer. Had radiation for lung cancer. CT’s since that are showing no change.  I also had to have a hysterectomy because I had cancer. My husband died this year. It has been quite a year.  2019 my pulmonary doctor wants me to start OFEV. I am really nervous about this because of the side affects. I am on oxygen 2l at night and 4 during the day. I go to a trainer 2 days a week. I am 75 years old and want to live as long as I can. I live with my son and family. Love being with the grandchildren.  It gets frustrating with the cough, shortness of breath.

Type of Diagnosis

IPF

Treatment / Medical Facility

Loma Linda University Hospital

Current medication regimen

Oxygen 2l at night, 4 during the day. OFEV to start soon.

Lung transplantation status

ineligible

Supplemental Oxygen

yes

Best advice for PF symptom management

Exercise and a positive attitude.

Are you currently taking an anti-fibrotic medication?

no

How did you find us?

Facebook

How long have you or the person that you are caring for had PF?

2 years

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