Joanne Hughes
Biography
Name | Joanne Hughes |
Nickname | joanne-hughes |
Year of Birth | 1944 |
Gender | Female |
Location | CA |
Relationship | Patient |
Short Bio | Diagnosis was in 2017 also found out I had lung cancer. Had radiation for lung cancer. CT’s since that are showing no change. I also had to have a hysterectomy because I had cancer. My husband died this year. It has been quite a year. 2019 my pulmonary doctor wants me to start OFEV. I am really nervous about this because of the side affects. I am on oxygen 2l at night and 4 during the day. I go to a trainer 2 days a week. I am 75 years old and want to live as long as I can. I live with my son and family. Love being with the grandchildren. It gets frustrating with the cough, shortness of breath. |
Type of Diagnosis | IPF |
Treatment / Medical Facility | Loma Linda University Hospital |
Current medication regimen | Oxygen 2l at night, 4 during the day. OFEV to start soon. |
Lung transplantation status | ineligible |
Supplemental Oxygen | yes |
Best advice for PF symptom management | Exercise and a positive attitude. |
Are you currently taking an anti-fibrotic medication? | no |
How did you find us? | |
How long have you or the person that you are caring for had PF? | 2 years |
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