Pulmonary Fibrosis News Forums | John Klinkosh | Activity https://pulmonaryfibrosisnews.com/forums/members/john-klinkosh/activity/ Activity feed for John Klinkosh. Thu, 23 Apr 2026 13:45:40 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 1410cc8b14235a150841c50d02204fbe John Klinkosh replied to the discussion Newly diagnosed UIP OFEV advice in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/newly-diagnosed-uip-ofev-advice/#post-31472 Wed, 23 Mar 2022 02:08:51 -0500 Reply to Newly diagnosed UIP OFEV advice

Hi,I’ve been on OFEV since around March 2018, I was diagnosed in November 2017. At first I had no side effects at all for about the first five months then I started to get some diarrhea nothing bad. Then about 2020 I started to have stomach problems, gas was a issue but I would solve the problem by not taking OFEV for 3 to 5 days depending how… Read more

]]> 4e50da0fc5f0393540ce52a99aa429e7 John Klinkosh replied to the discussion Ofev Users can Safely take Ofev on a Long Term Basis in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/ofev-users-can-safely-take-ofev-on-a-long-term-basis/#post-29213 Tue, 13 Jul 2021 21:22:14 -0500 Reply to Ofev Users can Safely take Ofev on a Long Term Basis

Hello, I’ve been diagnosed with IPF Nov., 2017 and went on OFEV around March 2018, I had no side effects for the first 6 months and then I did get some diarrhea and stomach problems. But I still take 150 mg twice a day, sure there are some bad days but I can get through them. I did have some very bad stomach problems at one time and I stopped… Read more

]]> 84d559b2c194da38962a320e3233f796 John Klinkosh posted an update: @ahoughton Hi, my name is John Klinkosh and I had the […] https://pulmonaryfibrosisnews.com/forums/activity/p/12902/ Fri, 07 Jun 2019 17:29:02 -0500 @ahoughton Hi, my name is John Klinkosh and I had the same problem as you about the cost of OFEV I went through Open Doors and they helpmeet get a grant from Boehringer-Ingelheim for OFEV. Every year you have to apply for a new grant, so far I’m on my second year. Also when I started taking OFEV I didn’t have any side effects at all for about… Read more

]]> 0 c9b5cf17e1ccee00f203a8030d159f60 John Klinkosh posted an update: I really don’t know how to use this forum. I was wondering […] https://pulmonaryfibrosisnews.com/forums/activity/p/1498/ Wed, 28 Mar 2018 01:55:46 -0500 I really don’t know how to use this forum. I was wondering how other’s are doing with there IPF and if they are tracking any trials with Stem Cells. What they do for diet and exercise. I read Bill Vick’s interview and how he coped with it but I don’t know if he is still alive and how he is doing. I have been trying to exercise about 5 – 6 times… Read more

]]> 0 7322f21c423142865734a63f8d6f12c1 John Klinkosh posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/1442/#acomment-1497 Wed, 28 Mar 2018 01:55:27 -0500 Thank you, I hope I can navigate through this forum

In reply to - John Klinkosh became a registered member ]]> a16699eaad2577a8b18cc2688280b31a John Klinkosh became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/1442/ Tue, 27 Mar 2018 14:29:30 -0500 3