john-roche
Biography
Name | John Roche |
Nickname | john-roche |
Year of Birth | 30/12/1951 |
Gender | Male |
Location | Kt12 |
Relationship | Patient |
Short Bio | Initially diagnosed with rheumatoid arthritis then had a biopsy was told I had polymositis started having coughing fits taken into hospital started coughing up blood was intubated for three months when they brought me round had lost the use of most parts of my body spent another 3months learning how to walk and getting the use of hands and arms and controlling other bits come out of hospital put in assisted living facility with carers to administered medication caught shingles bell’s Palsy and Ramsey Hunt syndrome I’ve had my face we will use me Achilles tendon to give me a mouth a gold Weight in both ears not much on my eye to open and close it having implants in my mouth to have Theeth attach to ear drums blown out so deaf not much balance and Idiopathic pulmonary fibrosis and few other odds and sods and after reading all that? |
Type of Diagnosis | IPF |
Treatment / Medical Facility | St. Peter’s ashford hospital St Georges I’m Guys Hospital And guilford Hospital |
Current medication regimen | To many |
Lung transplantation status | currently in evaluation process |
Supplemental Oxygen | no |
Best advice for PF symptom management | Waiting for next ct scan |
Are you currently taking an anti-fibrotic medication? | yes |
How did you find us? | |
How long have you or the person that you are caring for had PF? | About 7/8 years |
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