Biography

Name

John Roche

Nickname

john-roche

Year of Birth

30/12/1951

Gender

Male

Location

Kt12

Relationship

Patient

Short Bio

Initially diagnosed with rheumatoid arthritis then had a biopsy was told I had polymositis started having coughing fits taken into hospital started coughing up blood was intubated for three months when they brought me round had lost the use of most parts of my body spent another 3months learning how to walk and getting  the use of hands and arms and controlling other bits come out of hospital put in assisted living facility with carers to administered medication caught shingles bell’s Palsy and Ramsey Hunt syndrome I’ve had my face we will use me Achilles tendon to give me a mouth a gold Weight in both ears not much  on my eye to open and close it having implants in my mouth to have Theeth attach to ear drums blown out so deaf not much balance and Idiopathic pulmonary fibrosis and few other odds and sods and after reading all that?

Type of Diagnosis

IPF

Treatment / Medical Facility

St. Peter’s ashford hospital St Georges I’m Guys Hospital And guilford Hospital

Current medication regimen

To many

Lung transplantation status

currently in evaluation process

Supplemental Oxygen

no

Best advice for PF symptom management

Waiting for next ct scan

Are you currently taking an anti-fibrotic medication?

yes

How did you find us?

Facebook

How long have you or the person that you are caring for had PF?

About 7/8 years

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