Plane cabin pressure is about 8000 ft. I think I would rather have it with me and not need it, then need it and not have it.

Let us know how your flying after transplant goes.

John

Also I sleep in my armchair as I get exhausted climbing stairs and our bedroom is 2.5 stair levels up from my den where my armchair is. When I sleep my O2 is at level 20.

I am on no drugs to slow my scarring. I experienced the same problem. I am on O2 all the time. I am on the transplant list and will probably be transplanted either this summer or next summer. Resting at level 10 I get to 90-92 blood O2, but at level 20 I get to 98-99 which feels much better, so I use level 20 when resting in my armchair. …

Read more

I have 20% good lungs left, I am on 10-25 O2 levels depending on what I am doing. At home watching TV I can get by on level 10, but when I move out of my recliner I need more. I have 3 level 10 floor oxygen concentrators at home so all my home is covered. I am on O2 24/7. I have a work office outside my home and a home office. If I get up…

Read more

I use level 10 floor oxygen concentrators all the time now. At night I have 30 ft hose and put the concentrator in an adjacent room and shut both doors, with the cord going under the doors (in the middle so they don’t get kinked in the corners of the door).

I am on the transplant list and I need 3 floor concentrators to reach everywhere in my…

Read more

I am a Vietnam veteran with IPF – with no identifiable cause. I am 69 yrs old and the VA is covering all my IPF costs – I have no other disability – my IPF is not linked to my service. I am on the lung transplant wait list right now. They said as long as I applied for a transplant before age 70 I would qualify for a transplant.…

Read more

I was also told 3-5 years at diagnosis. 1 year later told 1-2 years, now at 1.75 years I’m on the transplant list and without a transplant have less than 1 year to live. I was on OFEV, initially it helped slow the progression but then as my body got used to it the progression came back aggressively.

PF is lung scarring as if you have cuts…

Read more

As a type 2 diabetic I was on 500 mg Metformin – 1 pill a day. The lowest dose possible and it kept my a1c low. But also taking any more caused diarrhea. I am 69, on 8-10 liters supplemental O2 needed almost all the time to keep above 90 blood O2, I have lost weight with IPF and also during my prep for getting on the transplant list…

Read more

I have extensively researched PF and the 2 slowing progression drugs and the studies and the drugs reversing scarring in mice and everyone else about PF and all the types of it. If it was on the internet I’ve read it.

The 3-5 years came from a old study done !y the Mayo Clinic and as Mayo Clinic is the gold standard most Pulmonologists…

Read more

Hi Everyone

My name is John, age 69, O blood type, in excellent health outside my lungs, on transplant list since 7/2/25, agreed to Hep C lungs, using 10 liters O2 at home can get by on 8 – and this thread is extremely helpful to me. This thread is really informative to me as it gives me information what may happen go me post transplant and…

Read more

<div>What influenced my decision to transplant or not – my deciding factors -</div>

I was diagnosed 2 years ago at 68, got the standard 3-5 years to live IPF diagnosis. O blood type. Last Dec (1 yr 2 months later).got new lifespan diagnoses 1-2 years go live, on OFEV from May 2024. Married, 2 adult kids, 2 young grandkids.

Told you have to be…

Read more

Any fumes make my cough and lower my blood O2.

No cooking in our kitchen, my wife cooks in the garage on tabletop.appliances and a hot plate now, being a Chef level cook who loves to cook and bake, my IPF has taken those away from her.

I can’t breathe fumes of any type. Even smells of food cooked in the garage, but brought into the kitchen table…

Read more

<div>Here are some of my tips -</div>

I have had PF for about 2 years now, I am 69 and listed for a transplant. I am on level 10 resting. I have bone from level 4 to 6 to 8 to 10. I have 5 blood O2 finger meters, so I have one where ever I’m at so not to have to carry one around at home or work – I still work most of my week full time. I…

Read more

Taking a drink of water helps me.

I use Delsym DM cough syrup. It works.

Daily I take a Costco Multi and a Vit D suppliment.

To help with fatigue and O2 levels I take a energy booster with caffine in it too.

All this helps a great deal

I am a born again Christian who walks his talk. For me, death lets me go to my forever home – Heaven. My family are born again Christians who know they are going to Heaven as they also have made Jesus their personal Lord and Savior. So although their hearts hurt when I told them, in their heads they knew they would see me again in Heaven. I… Read more

I’ve been on Ofev for about 1.5 years, the only way it is free is to be a Vet and get it through the Veterans Pulmonologists. However, if your Dr medicare or private insurance Dr will prescribe you Ofev or Esbriet, my Medicare supplement referred me to the online Canadian prescription drug store, and by faxing them my prescription I found… Read more