Forum Replies Created

  • John K

    Member
    February 4, 2025 at 1:37 pm in reply to: Elevated sleeping position

    Hi Charlene,

    I have mild fibrosis along with severe asthma and severe GERD. I was told to elevate my bed for both symptoms. Based on some recommendations I purchased a 7” wedge to put between my mattress and box. I felt and actually ended up half way down the bed due to the angle and couldn’t stop sliding down. I raised the bottom of my bed 2” to make a 5” wedge. I still didn’t like it and I developed neck pain. So I removed everything and put a 2.5” blocks on the front bed footers and can deal with it. Regardless of the angles I tried I have no GERD symptoms and I don’t know if it’s helping my lungs but can’t see why it wouldn’t. My recommendation is to start with a small angle (2”) and work yourself up to a higher angle if needed. Good luck

  • John K

    Member
    March 14, 2024 at 4:27 pm in reply to: Gabapentin usage

    I was on 2100+ mg for multiple lower back issues for quite some time and I was having too much brain fog along with long term Covid brain fog, so at some point I couldn’t recall names easily. I’ve cut my gabapentin down to 1200 using a schedule chart for reduction. Your Dr should be able to provide you with a reduction schedule that’s safe for your condition.

  • John K

    Member
    January 6, 2023 at 7:53 am in reply to: Healing scar tissue zoom call recording

    Wesley,

    Thank you for providing the zoom meeting. It was the first interactive event on IPF that I ever attended and I really enjoyed it.  Hope to see more. Could you please provide me with the link?

    Regards

  • John K

    Member
    October 18, 2022 at 6:21 pm in reply to: New Zoom meeting – taking the bull by the horn

    Sounds good

  • John K

    Member
    July 26, 2022 at 2:59 pm in reply to: Covid causing pulmonary fibrosis

    @rebecca

    Hello,

    I also developed mild PF after a hospital bout with Covid and Pneumonia in March of this year. A cat scan from the hospital confirmed this.  My pulmonary Doctor has tested my Lung capacity three times now and for each time the results were good (according to him).  He doesn’t  want to put me on any meds at this time! My latest cat scan this month (July) showed I still have Pneumonia, ground glass opacity(whatever that means)  but no PF.  When I asked the Pulmonary Doctor about no PF on the cat scan he brought up my scan, zoomed in on an area and quickly showed me an area that appeared white and said I have PF.  Has anyone experienced this descrepancy and what should I do?  I don’t have any coughing but I do get out of breath if I start doing moderate activities and I am regularly fatigued.

    Regards John