paula

@patriciadubose

This is a really good discussion topic to start Patricia, thank you for bringing it up! I am still on the pre-transplant side of things, so I don’t have too much to offer about the final listing process. I’ll tag a few folks below who I know have had a transplant, and let’s see if they have any suggestions to share with you.…[Read more]

( @justme0956 )

Hi Paula

Read your comments with interest as I have just experienced a reaction to Esbriet. Have only been on it since Jan this year and up to now no problems. Rash appeared on neck, arms, face and upper chest. Have always applied sunblock as directed so don’t know where this came from. Doctor gave me some cream and tablets to…[Read more]

Hi Peggy,

Wow, thank you so much for sharing this, I actually had no idea it existed! @justme0956 (Paula), did you see this? So glad Mass General has such great outcomes/results and that you’re in good hands my friend. You are so kind in sharing the results of your research Peggy, thank you! Please keep us posted on how your husband makes out and…[Read more]

I wish I could join you both for coffee @cynthia-comery-ferguson and @justme0956 (Paula)! Enjoy catching up and know that my heart is with you while you’re together. It’s so nice to be able to connect with people going through the same experience. Let me know how it goes, and enjoy your coffee meet up 🙂

Charlene.

Hi Gary,

Thanks so much for writing to us, and for your kind words to each of us involved in this topic thread. A very tough topic to discuss, but really important so I am glad you shared a bit more about your story here. I also am very thankful for Megan and her willingness to share her Dad’s story with us!

Kudos to you for your ability to…[Read more]