Biography

Name

John Wilkerson

Nickname

john-wilkerson

Year of Birth

1957

Gender

Male

Location

Captain Cook, Hi

Relationship

Patient

Short Bio

Fibrosis showed in X-ray possibility as early as 2012, more so in 2014. Diagnosed in 2017. I’ve been on ESBRIET for 2 years.  Living in Hawaii isn’t the best location as there is poor health care. There are no transplant centers so I will be relocating to Texas in November 2019 where there are 5 centers. I grew up in an exterminating household in the 60’s and 70’s prior to EPA standards. I experience Gurd from weight loss surgery. I’ve been exposed to mold, pet dander and rodents just prior to my first emergency room visit, 2014.

Type of Diagnosis

IPF

Treatment / Medical Facility

Straub medical on Oahu , now CHI St Luke’s Baylor, Houston

Current medication regimen

Esbriet 801×3

Lung transplantation status

currently in evaluation process

Supplemental Oxygen

yes

Best advice for PF symptom management

Be your own advocate. Don’t except  maintenance drugs with no additional possible care or treatment. Join face to face support group. Don’t believe what you read, everyone is different.

Are you currently taking an anti-fibrotic medication?

yes

How did you find us?

Facebook

How long have you or the person that you are caring for had PF?

2014

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