john-wilkerson
Biography
Name | John Wilkerson |
Nickname | john-wilkerson |
Year of Birth | 1957 |
Gender | Male |
Location | Captain Cook, Hi |
Relationship | Patient |
Short Bio | Fibrosis showed in X-ray possibility as early as 2012, more so in 2014. Diagnosed in 2017. I’ve been on ESBRIET for 2 years. Living in Hawaii isn’t the best location as there is poor health care. There are no transplant centers so I will be relocating to Texas in November 2019 where there are 5 centers. I grew up in an exterminating household in the 60’s and 70’s prior to EPA standards. I experience Gurd from weight loss surgery. I’ve been exposed to mold, pet dander and rodents just prior to my first emergency room visit, 2014. |
Type of Diagnosis | IPF |
Treatment / Medical Facility | Straub medical on Oahu , now CHI St Luke’s Baylor, Houston |
Current medication regimen | Esbriet 801×3 |
Lung transplantation status | currently in evaluation process |
Supplemental Oxygen | yes |
Best advice for PF symptom management | Be your own advocate. Don’t except maintenance drugs with no additional possible care or treatment. Join face to face support group. Don’t believe what you read, everyone is different. |
Are you currently taking an anti-fibrotic medication? | yes |
How did you find us? | |
How long have you or the person that you are caring for had PF? | 2014 |
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