Pulmonary Fibrosis News Forums | Kathy Legere | Activity https://pulmonaryfibrosisnews.com/forums/members/kathrynlegere/activity/ Activity feed for Kathy Legere. Thu, 16 Apr 2026 13:46:44 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 da48eed7588bd997c2edcd727a3bcbe4 Kathy Legere replied to the discussion No lung transplant in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/no-lung-transplant/#post-37727 Wed, 04 Dec 2024 11:34:37 -0600 Reply to No lung transplant

My husband died two weeks ago of Covid/IPF. We had been evaluated at Duke, Temple, NYULangone, Columbia, U of Pennsylvania and Montefiore.

May I give my opinion as a wife of an IPF sufferer and now a widow of this ugly disease? Please look up the best transplant centers and see what they say. I’ve read of patients in their 80’s who have…

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]]> 99e136058969e726d2eb68bccf667bd4 Kathy Legere replied to the discussion how important is getting an official diagnosis right away? in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/how-important-is-getting-an-official-diagnosis-right-away/#post-36312 Wed, 13 Dec 2023 12:39:51 -0600 Reply to how important is getting an official diagnosis right away?

My husband has been diagnosed since 2016. If you have a lung transplant center near you please go and get evaluated for a transplant. My husband is now 75 and we have been turned down at 5 centers for a transplant. We are waiting to hear from Temple as they take more difficult cases. His age is a factor. I wish we had tried to get listed in…

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]]> 4d286238f7588ab46c7a4c43de1081b8 Kathy Legere replied to the discussion OFEV Side Effect reduced! in the forum PF Communities https://pulmonaryfibrosisnews.com/forums/forums/topic/ofev-side-effect-reduced/#post-36114 Wed, 01 Nov 2023 01:02:12 -0500 Reply to OFEV Side Effect reduced!

My husband has been taking cinnamon capsules (CinSulin). I give him 2 capsules with his morning Ofev(150mg) and it seems to help.

]]> 0aa2b10a6c73d90d38939d96edbe42ab Kathy Legere replied to the discussion Lung Transplant in the forum Using Our Forums https://pulmonaryfibrosisnews.com/forums/forums/topic/lung-transplant/#post-35658 Fri, 18 Aug 2023 02:54:50 -0500 Reply to Lung Transplant

Hi Kim. You give me hope. My husband has had IPF since 2016 but took a real downturn a year ago.  We have been turned down by Duke and NYU Langone but are hopeful at Temple and Columbia Presbyterian NYC. As we live in CT I’m hoping Columbia will be a yes. Your journey is so encouraging. Thank you!

]]> c29430c7fb60a2415dd4e25444bd4b75 Kathy Legere replied to the discussion Best Lung Center in Northeast USA in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/best-lung-center-in-northeast-usa/#post-35656 Fri, 18 Aug 2023 02:54:39 -0500 Reply to Best Lung Center in Northeast USA

My husband is 75. We have been turned down by Duke and NYU Langone.  We are currently trying to get listed at Temple and Columbia Presbyterian in NYC. We live in CT so Columbia would be our most convenient center.  We went to Temple as they are supposed to tackle more difficult cases. We have friends that were turned down at 5 centers and was… Read more

]]> 6ee39866cd9753c4c1131af00d91ec0a Kathy Legere became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/31837/ Thu, 24 Feb 2022 23:28:32 -0600 1