Forum Replies Created

  • kathy-medina

    Member
    August 6, 2019 at 9:52 am in reply to: Pedometer, SpO2 bracelets/watches

    Hi Linda,

     

    I was telling my pulmonary doctor last year that I didn’t care about a fit bit but I we should invent something like that that would monitor your O2 levels!  I was in the Dr office about a month ago and found a ad for a unit called H.E.l.O).  It claims to monitor heart rate, sleep, blood pressure, calories, mood, energy, steps, panic button, perform EKG and best of all coming soon is blood sugar, blood oxygen, and blood alcohol.  Here is the information: to purchase: http://www.stgeorgehealth.worldgn.com or for more info: http://www.stgeorgehealth.helo.life/tour3 there is also a phone number 407-963-0602.  I called and the one that monitors your blood oxygen is due to come out in December. As I recall it was not too pricey!  I hope this helps you.

    Kathy

  • kathy-medina

    Member
    April 26, 2019 at 8:54 am in reply to: Episodic Dizziness & Pulmonary Fibrosis

    Hi Charlene

    I was surprised to see this.  I experience dizziness myself.  I have been so dizzy everytime I stood up that I honestly lost all touch with reality.  I was very afraid that I may pass out.  I have been to my doctor who referred me to a ENT and when all was good there he referred me to a balance test then when all was well there I was referred to a Neurologist.  The only thing the Neurologist came up with is it must be my blood pressure.  They took me off of my high blood pressure medicine.  It has not cured the dizziness but it did help.  I would love to know if anyone else is experiencing dizziness and what the cure is.  I hope it is not directly linked to IPF because it sounds as though it may be here to stay.

    Kathy Medina

  • kathy-medina

    Member
    April 16, 2019 at 8:48 am in reply to: Recently diagnosed with IPF & Honeycomb Lung

    Hi John

    Welcome to the forum.  I am on Esbriet.  The side effects are not good.  The one that I notice the most is I have to take it with food or it will give me the worst heartburn symptoms you can imagine.  It is also very difficult for me to eat 3 meals a day.  I know it says to try to take it at the same time each day but, I feel an accomplishment to get it down 3 times a day!  I too love the sun and there is plenty here.  The first summer I after my diagnosis I was in the sun too long w/o realizing it and I got some rash they could not diagnosis that was both painful, itched and was ugly. Now I use plenty of sunscreen with at least a 50 SFP rating.  So far so good. I recently moved from  Salt Lake City Utah to Mesquite Nevada for the air quality.  The air in Salt Lake is real BAD. I made the move knowing there is lots of heat and sunshine here but also central air.

    Kathy