Kathy Goodknight

Thank you Ted.

Hi Jenny, I received a single lung transplant. They don’t give anti fibrotic after transplant. People do switch from one medicine to another. It is the patients choice. Take care, mark

Hi Julie, I’m glad you were persistent in obtaining the home concentrator. I’m glad to hear your husband is doing better. We all desire proper medical care and thankfully caregivers like yourself step in and have to demand these services. Have great night, Mark.

Hello Bill, first of all thank you for sharing. I think it’s great how physically active you are. Your positivity will enhance your prognosis. Your contributions will always be welcome. Have a great rest of the night, Mark

Hi Steven, much of the literature still contains the estimated 3-5 years expected life span. I don’t know why they wouldn’t move to using a medium rather than an average for measurement. I do think many hospitals and institutions are trepid in their estimations until a large respected institution changes their numbers. I think a valid and rel…[Read more]

Hello John, you have a wonderful positive outlook. Taking your medicine on time helps with the efficacy of the medication. You are right about the gastric effects. Some people do everything right, eat healthy and eat the small meals and have disheartening gastric effects. Others can eat pizza and wings and the medicine doesn’t have a negative e…[Read more]

Hello Carlo, in order to get the information you desire I suggest you participate in phase 2 pulmonary rehabilitation. They will be able to gauge your performance and they will provide you with the METS required and desired. Here is a link explaining this…[Read more]

Hello Rheal, thank you for sharing your story. Please take care, mark.

Thank you JT.

Hello Carlo, you make me laugh. Thank you for kind comment. The key master tab signifies I am one of your co-moderators for the forum. Charlene Marshall is your other moderator. I’m hoping another member can answer your question on Esbriet. I have no experience with this medicine and don’t think I can comment satisfactory. I was on Ofev. I wou…[Read more]

Hi Jill, I had a home concentrator that went to 10 lpm and I used the E series tanks when I was out of the house. A friend built an insulated tank holding container that I placed in the back of my pickup. Every cpl days I would get 22-26 tanks. I was still working so I used the E tanks while I was work and any time out of the house. The custodians…[Read more]

Hi Marj, I looked up a research study on the effect of digital clubbing on oxygen saturation. The study used cystic fibrosis patients. There is an affect, however your reading can underestimate the reading. My heart rate used to jump almost 50 points when I stood up from a seating position. I’m not sure about the blood pressure. Another question f…[Read more]

Hello Kathleen, you have been through quite an experience. I’m happy you survived the ordeal. I can’t imagine what you had to endure. You are a strong woman to have beat this disease. May you never have to go through anything like this again. Have a great breathing day Kathleen, Mark.

Hi Marj, I have not experienced what your husband has been through. I do know he needs to be seen by a pulmonologist and possibly a gastroenterologist. Patients are still being seen in the office. The excuse by medical professionals of Covid being the cause of why a person can not be seen by a physician does not fly with me. Not every medical…[Read more]

Hello Jill, I can tell you first hand that you can have exacerbation and be on an anti fibrotic medicine. I was on Ofev and suffered an exacerbation and was hospitalized. My treatment was more supplemental oxygen as I went from 4 liters of pulse o2 to 6-8 liters of continuous flow. As you can see it was a drastic change and set my lung transplant…[Read more]

Hello Bobbie, I don’t know where in WV you reside but you are in driving distance from two highly regarded lung transplant centers; UPMC in Pittsburgh and the Cleveland Clinic where I had my transplant. Please ask fir the referral because you have a window to get the transplant, and you want to be relatively healthy when going through the e…[Read more]

Hello Vishal, you have made a great post. Thank you for sharing. Have a great Sunday, Mark.

Hi Manzurul, you have a great outlook. You are doing everything right including getting a second opinion. Have a great Sunday, Mark

Hi Kathleen, I’m sure you have read the thread. There could be several reasons why this is happening to you. Please speak with your physician and voice your concerns. There may be inflammation that is causing your problem, and in many cases this can be fixed. Have a great Saturday, Mark.