Pulmonary Fibrosis News Forums | Kim Jacomo | Activity https://pulmonaryfibrosisnews.com/forums/members/kimjacomo13gmail-com/activity/ Activity feed for Kim Jacomo. Wed, 22 Apr 2026 16:32:15 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 ef24df0a0f3414e20aee53441d431bfe Kim Jacomo replied to the discussion Saracatinib in the forum Canadians With PF https://pulmonaryfibrosisnews.com/forums/forums/topic/saracatinib/#post-35631 Wed, 16 Aug 2023 16:39:15 -0500 Reply to Saracatinib

John, please let us know if the Yale doc has any updates on the drug.  I’m having a difficult time finding OFEV, but perhaps since Saracatinib is also used for some cancers the cost of the drug wont be as daunting as OFEV and Esbriet.

]]> 8186e313f253d43869ab1e9eb3d4a018 Kim Jacomo replied to the discussion OFEV cost and assistance in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/ofev-cost-and-assistance/#post-35595 Tue, 15 Aug 2023 13:11:19 -0500 Reply to OFEV cost and assistance

Hi everyone,

Are there any updates on finding OFEV?  I haven’t had any luck in receiving assistance.

Thank you,

Kim

]]> cc7e6cc9a0df7927ea50fa3d50f1245a Kim Jacomo replied to the discussion Ofev Users can Safely take Ofev on a Long Term Basis in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/ofev-users-can-safely-take-ofev-on-a-long-term-basis/#post-30352 Wed, 03 Nov 2021 22:01:49 -0500 Reply to Ofev Users can Safely take Ofev on a Long Term Basis

Mark,

My brother is having a horrible photo sensitivity to the Esbriet and is interested in switching to Ofev, however, he has a heart condition and has been warned that Ofev would not be a good thing to go on.  Have you heard anything lately of Ofev and heart isssues?

Thanks,

Kim

]]> 9a5e3772b1f7af125e178d0ad5fcae38 Kim Jacomo posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/28065/#acomment-28223 Wed, 07 Jul 2021 22:31:28 -0500 Thx Christie, can you tell me how to start a feed?

In reply to - Kim Jacomo became a registered member ]]> b672cd59a0e35afdefcfb39ed8eff8be Kim Jacomo replied to the discussion Taking time off from esbriet in the forum Esbriet (Pirfenidone) https://pulmonaryfibrosisnews.com/forums/forums/topic/taking-time-off-from-esbriet/#post-29080 Thu, 01 Jul 2021 15:21:30 -0500 Reply to Taking time off from esbriet

My brother has been on the 1 pill a day for a few months, but he seriously experiencing a really bad case of photosensitivity to the drug.  Has anyone experienced terrible skin reaction to the sun on Esbriet?  He is spending his time in the basement just to get out of any kind of light.  I suggested he ask his pulmonologist to either lower the… Read more

]]> 0d4f2a94d2b54960aa6a168c4fdd2daa Kim Jacomo became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/28066/ Wed, 30 Jun 2021 13:20:44 -0500 1 1dd49ff8030865d0b231c71458433887 Kim Jacomo became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/28065/ Wed, 30 Jun 2021 13:20:43 -0500 3