Pulmonary Fibrosis News Forums | kitt | Activity https://pulmonaryfibrosisnews.com/forums/members/kitt/activity/ Activity feed for kitt. Mon, 13 Apr 2026 15:27:08 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 6a746584ae7ebbf4de4d4ed38a20e7dd kitt replied to the discussion Nerandomilast approved by the FDA in the forum Treatments and Science https://pulmonaryfibrosisnews.com/forums/forums/topic/nerandomilast-approved-by-the-fda/#post-38960 Tue, 21 Oct 2025 21:05:42 -0500 Reply to Nerandomilast approved by the FDA

I believe that this drug may appear on the formulary more quickly than most because it is a real improvement, although not a cure. For example the FDA got through its process in only 5 months instead of a year plus because it has both breakthrough and orphan drug designations. The significant difference in side effects means that it should…

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]]> 5917f37f90eb29848b55e21dde84f586 kitt replied to the discussion does tyvaso imrove IPF or slow decline? in the forum Treatments and Science https://pulmonaryfibrosisnews.com/forums/forums/topic/does-tyvaso-imrove-ipf-or-slow-decline/#post-38897 Tue, 30 Sep 2025 19:59:35 -0500 Reply to does tyvaso imrove IPF or slow decline?

If you go to United Therapuetics website and read the press release they refer to improvement in DLCO. Bear in mind, they need the results from one more clinical trial before they file with the FDA. They do not expect to come to market with this drug for IPF until 2027. Right now it is only approved for PAH.

]]> e0e418682cacefa8b8a2af374c860c45 kitt replied to the discussion Questions Re OFEV in the forum Using Our Forums https://pulmonaryfibrosisnews.com/forums/forums/topic/questions-re-ofev/#post-38896 Tue, 30 Sep 2025 19:52:58 -0500 Reply to Questions Re OFEV

I have had a similar situation. First, when they say to take it with protein they really mean 30 or 40 grams of protein each time. I did make a dent in my side effects on the GI side when I increased the protein, but I had a bad hep panel, unrelated to the protein; it is a known side effect. Because I was traveling we cut back to one dose…

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