Lauree Kelly
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I felt better after taking Ofev but my liver functions were through the rough. Esbriet made me have many GI issues. I wish I could have continued on Ofev.
Lauree
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I have been living with PF for about 6 years. For the first 5 years I was on disability because I also have PH, Sarcoidosis and COPD. I went back to work by God’s grace on 12/13/16 and while I do have the ability to sit all day, I am constantly talking as I work with a telecommunications giant. I am so exhausted after 8 hours of talking, then I commute home about 40 minutes and this is all getting up at 5:00am. I am raising my 7-year-old granddaughter and I am blessed to have some help with her, but she sticks to me like glue. I feel awful because I can’t get out there and play with her like I did with her mom. I fall into bed at about 8:30pm and put my non-mechanical ventilator and it does help me breathe better at night but I still toss and turn. I am blessed to have some days that I can get through the whole day without feeling worn out. I think my guilt is one of my issues because I truly do not feel completely rested. I will say that when that baby girl snuggles up with me, I drift right off. She is the right medicine.