Biography

Name

Leanne Storch

Nickname

leanne-storch

Type of Diagnosis

IPF

Treatment / Medical Facility

University of Chicago

Supplemental Oxygen

yes

Best advice for PF symptom management

If you are on oxygen, be sure to learn about it. Ask questions. There is a lot of wisdom on these types of boards from people who have a lot of experience with oxygen. There is a lot of information that the Pulmonologists and Oxygen providers don’t know to tell us. Like O Rings. If you are on oxygen tanks, be sure to ask your oxygen provider for extra O Rings. If one falls out and you don’t have an extra, no oxygen for you. I learned the hard way and happened to be with a friend who had an extra.

Are you currently taking an anti-fibrotic medication?

no