Pulmonary Fibrosis News Forums | joyce | Activity https://pulmonaryfibrosisnews.com/forums/members/lenoxx/activity/ Activity feed for joyce. Fri, 17 Apr 2026 23:55:43 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 588f72a941dc0a6b01df0eb9c4cb9a0b joyce replied to the discussion Excess mucous in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/excess-mucous/#post-35615 Tue, 15 Aug 2023 21:30:44 -0500 Reply to Excess mucous

THANKS

]]> 965f7a800786fe75b63230839df12409 joyce started the discussion Excess mucous in the forum Welcome Lounge https://pulmonaryfibrosisnews.com/forums/forums/topic/excess-mucous/ Thu, 10 Aug 2023 22:16:50 -0500 Excess mucous

I have had an issue with excess mucous for the last 3 months my Pulmonary Doctor did not tell me that this is a sign of my lungs getting worse not being able to expell the mucous. Why don’t the doctors tell you  whats coming up next with disease? Is any where to find info on timeline of symptoms. I know everyone… Read more

]]> a4b3586020b61ec00fba812ac220030b joyce posted an update: I am now 65 finding if difficult to get Medicare to pay […] https://pulmonaryfibrosisnews.com/forums/activity/p/38558/ Thu, 04 May 2023 13:09:12 -0500 I am now 65 finding if difficult to get Medicare to pay for my Ofev. Has any one had this issue?

]]> 0 4e2189f37c73c4c32f62ef360b3bd35b joyce replied to the discussion travel while on ofev in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/travel-while-on-ofev/#post-33271 Tue, 11 Oct 2022 22:01:46 -0500 Reply to travel while on ofev

thanks

]]> 704d686b704411427bf09f5be5a6733a joyce replied to the discussion travel while on ofev in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/travel-while-on-ofev/#post-33269 Tue, 11 Oct 2022 21:08:24 -0500 Reply to travel while on ofev

thanks so much

 

]]> d81a76dc6a45cef5b59036447edece45 joyce started the discussion travel while on ofev in the forum Ofev (Nintedanib) https://pulmonaryfibrosisnews.com/forums/forums/topic/travel-while-on-ofev/ Fri, 07 Oct 2022 15:34:52 -0500 travel while on ofev

would like to travel but my stomach issue and diarrhea I’m afraid what are some suggestions? I thought maybe I could stop taking it before my trip or decrease dosage? I feel trapped.

 

joy

]]> ada52f81620be334728931df4ff16666 joyce replied to the discussion Vaccinated PF people and COVID 19 in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis https://pulmonaryfibrosisnews.com/forums/forums/topic/vaccinated-pf-people-and-covid-19/#post-30236 Wed, 20 Oct 2021 00:06:14 -0500 Reply to Vaccinated PF people and COVID 19

I understand your fear I am also on rixtuan I have had 3 doses of the vaccine. I try to be very careful my daughter in laws

grandfather had a break thru infection after being vaccainated and died. And hearing today about Colin Powell give me pause for thought.  But we must live our lives and be very careful hope you stay safe and remember.… Read more

]]> 588cf2f314945a0eefb1bec49b13d99f joyce replied to the discussion Vaccinated PF people and COVID 19 in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis https://pulmonaryfibrosisnews.com/forums/forums/topic/vaccinated-pf-people-and-covid-19/#post-30086 Tue, 28 Sep 2021 20:38:30 -0500 Reply to Vaccinated PF people and COVID 19

I need to go to Chicago  but I live in Oklahoma I want to fly but driving or flying terrifies me. Has anyone been traveling during the pandemic?

Nice to have a site to read about other people who live with IPF

 

Joyce

Thanks

]]> 403a7812dc5f2a38def0aa51ad7e8c37 joyce posted a new activity comment https://pulmonaryfibrosisnews.com/forums/activity/p/29585/#acomment-29635 Mon, 20 Sep 2021 03:19:31 -0500 thanks accepting me

In reply to - joyce became a registered member ]]> e25e8bc60bc6dd5c618d698f56a074b3 joyce became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/29585/ Wed, 15 Sep 2021 16:12:25 -0500 2