Forum Replies Created

  • linda-6996

    Member
    November 28, 2019 at 10:38 am in reply to: Oxygen Questions

    I just had some tests done yesterday and was told that although my levels have dropped, I don’t need home oxygen yet but I do need oxygen if I fly to Florida this winter because my levels will automatically fall some more..  Is anyone else in this position and is it a complicated or expensive process to arrange?  I live in Toronto but I was thinking about flying out of Buffalo.  I haven’t booked my flight yet…are some airlines better to work with than others in trying to arrange this?  Is there anything I should be aware of before starting the process.  Thank You!

  • linda-6996

    Member
    October 29, 2019 at 10:08 am in reply to: Inhaler Use for Pulmonary Fibrosis

    I’m so glad you have done a post on inhalers because I started on one and it was a DISASTER!  Let me give you some medical background first because I would love to know if anyone else has had a similar experience.  I had a chest X-ray done at the hospital following a bout of atrial fibrillation.  It showed my lungs were perfectly clear.  Three weeks later, my cardiologist started me on Amiodarone to better control my afib.  I thought it was a wonderful drug until one year later when I started having breathing problems.  They did another chest X-ray which showed a problem so they then did a thoracic CT scan and diagnosed me with pulmonary fibrosis…presumably caused by the Amiodarone.  Six months later, I had another thoracic CT scan for comparison sake which showed the P.F. had advanced to cancer in both lungs. I would like to know if anyone else has had the same experience with Amiodarone.  Last month, I was told that my airways are narrowing and I was put on Incruse Ellipta daily (1 puff, once daily) and I immediately went into afib for several hours.  I was also given Salbutamol along with an aero chamber as a rescue inhaler.  I’m terrified to use either one of them for fear of going into afib again.  Evidently ALL of the inhalers will cause afib so I am simply putting up with all the wheezing and coughing and getting very little sleep as a result.  Neither the doctor or the pharmacist are able to suggest an inhaler that WON’T cause afib.  I’m hoping that someone knows of one that I can use.  In the meantime, I’ll try the drug free salt route.  It may be my only option.  Thank you all.

    Linda

  • linda-6996

    Member
    October 3, 2019 at 10:52 am in reply to: Aloha from Hawaii

    Aloha!

    You truly are in paradise!  ENJOY to the max..

    As a fellow Canadian I would like to know which company you used for out-of-country health insurance as I have been unable to find one that will sell me insurance to travel to the U.S.

    Thanks!

    Linda