Hi Richard,

Thanks for clarifying the use of inhalers for IPF. Just to be sure I am understanding correctly,  a steroid inhaler may or may not help someone with IPF and no other underlying lung problems, just depends on the individual.

Thanks again  ,Liz

Hi Paul and Renee, thanks for your reply. I guess I will keep using it till I see my GP again.  If its not doing any good I can’t see the point in taking it and so far I have not seen any improvement.  Appreciate your response.

Liz

Hi Wendy,thanks for your prompt reply.  I know they are prescribed for asthma, COPD and possibly other lung diseases but for some reason I always assumed that they did nothing for IPF. I  have only been trying it for 2 days, I will give it a week or so and see how it goes.

Thanks again, Liz

I am curious if anyone is using an inhalor to aid with beathlessness.  I have a new GP as my old one just retired and he asked me if  I had ever tried one.  No one has ever mentioned this to me before and I just assumed that inhalors had no effect on IPF. Any feedback would be appreciated

Liz

Judy, further to my previous post another good resource is the following web site,

https://www.health.qld.gov.au/nutrition/patients. scroll down to High Protein/High Energy diet.  It is an Australian Govt Web Site and  you will find really good info.

Hope this helps

Hi Judy, I too was losing weight and had no appetite. I was recommended to a dietician and she has really helped me. Apart from the high nutritious diet what has worked best for me was her suggestion of 6 small meals during the day rather than the traditional breakfast, lunch, dinner. She also recommended milk powder added to a glass of milk… Read more

Marianne and Susan,

Thank you so much for your replies, its great to have this forum to turn to.

Cheers, Elizabeth

Hi, I am new to the forum and I have recently started on Oxygen, my prescription is for 2LPM as needed. First of all I am in Australia so our health system is probably a little different to others,but basically I was provided with a home concentrator but nothing portable.  I would like to get a POC so  that I can continue with my daily walks … Read more

Hi everybody, I too have started to experience headaches, I am on Esbriet so thought it was a side effect of the meds but now I am thinking it maybe another wonderful symptom of IPF……………………… they are slight and usually go away after a few hours but another thing to deal with and we don’t need any more, right?