Biography

Name

Lorena Quinlivan

Nickname

lorena-quinlivan

Year of Birth

1962

Gender

Female

Location

Canberra

Relationship

Caregiver

Short Bio

Hi all

My husband was recently diagnosed with IPF. I just need to be able to have people I can discuss this with so I know how to help. He is a heavy smoker although he says he has cut back. He is yet to see the lung specialist to do the lung tests etc. I have noticed he wakes in a pool of sweat as well. I guess it must go with having the IPF. Thanks for letting me join, I feel alone trying to help him.

lorena

Type of Diagnosis

IPF

Treatment / Medical Facility

Phillip Medical Centre Canberra

Current medication regimen

Still to be assessed

Lung transplantation status

to be determined, currently in evaluation process

Supplemental Oxygen

no

Are you currently taking an anti-fibrotic medication?

no

How did you find us?

Facebook

How long have you or the person that you are caring for had PF?

Diagnosed 4 weeks ago and I think treatment has been delayed due to this Covid 19

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