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Charlene Marshall replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 2 years, 9 months ago
Hi @lorraine
Oh it is so nice to hear from you!!! I’ve been thinking of you lots, especially early in the pandemic when my beloved NYC (I love that city!) was hit hard by COVID. Glad you’re doing as well as possible, and enjoying some time outside and with friends and family – we still need a life to live outside of the virus, albeit as safe as…[Read more]
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Charlene Marshall replied to the topic Starting Ofev in the forum Ofev (Nintedanib) 2 years, 9 months ago
Hello my friend!
Not too worry at all — I’ll check my junkmail for your email in case it landed there, but hopefully not. Write when you can, but no rush. Goodluck to you and your wife tomorrow. I’ll be thinking of you!
Hmm, I wonder if the woman you’re referring to is @Lorraine … does this sound like you Lorraine? 🙂 I’ll give some thought…[Read more]
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Charlene Marshall replied to the topic Corona virus in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 1 month ago
Thanks for sharing this link with us @lorraine ! So appreciate seeing that it is coming from National Jewish Hospital, a credible source, as so much mis-information is flying around about COVID-19. I will take a peak at these updates, and hope others will also. Thanks for sharing 🙂
Charlene. -
Charlene Marshall replied to the topic Mental Health & COVID-19: A Check-In in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 3 years, 2 months ago
LOVE all these suggestions @lorraine ! I am sure many others will benefit as well, and connecting to your silly 8 year old self – how perfect. We all need to remember laughter, goofiness and youthfulness throughout this crazy time. Zoom is such a God send isn’t it? I love being able to use it as well. Maybe I can create an opportunity for a PF…[Read more]
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Charlene Marshall replied to the topic Mental Health & COVID-19: A Check-In in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 3 years, 2 months ago
Hi @lorraine ,
Thank you so much for chiming in on this topic and letting us know how you’re doing. I am thinking of you all in the NY-area so much!!!! I’m glad to see some green and blue hearts on your “check-in” and hear how you’re keeping yourself busy and strong. As thing worsen, feel free to reach out – we sure are facing difficult times…[Read more]
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Charlene Marshall replied to the topic Apple COVID-19 Screening Tool in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 3 years, 2 months ago
Hi Everyone,
Thank you for sharing this post with us @lorraine . Please note: I approved this with caution, because while Apple is very good at what they do and their tools are useful in our every day lives; I’d encourage screening tools only from credible health sources like the CDC or World Health Organization (WHO). This is a good r…[Read more]
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Charlene Marshall replied to the topic PSA Safe Grocery Shopping in COVID-19 Pandemic – UPDATED!!! – YouTube in the forum Coronavirus (COVID-19) and Pulmonary Fibrosis 3 years, 2 months ago
Hi @lorraine ,
Thank you for sharing this – I would imagine many others will be interested in learning about it! Hope you’re doing well.
Charlene. -
Charlene Marshall replied to the topic How The Apple Watch Can Assist Patients with Pulmonary Fibrosis in the forum Pulmonary Fibrosis Awareness & Advocacy 3 years, 5 months ago
Hi @lorraine,
I am slowly getting better – for about 5 weeks now I’ve been seriously plagued with various infections which have exhausted me and occasionally required hospitalization too. Happy to report that I am on the mend, though!
Glad you’re seeking support as needed, I am 100% convinced none of us can do this alone and without the help of…[Read more]
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Charlene Marshall replied to the topic How The Apple Watch Can Assist Patients with Pulmonary Fibrosis in the forum Pulmonary Fibrosis Awareness & Advocacy 3 years, 6 months ago
Hi @Lorraine,
I hope you’re doing well!
Wouldn’t that be great? I talked to PF News about a year ago about an online support group using a platform like Zoom but due to other projects, this one was kind of halted. There are a few online support groups out there if you’re ever interested in them, let me know and I can send you some links. Aside…[Read more]
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Charlene Marshall replied to the topic Have you tried a Salt Room? in the forum Diagnosis Information and General Questions 3 years, 9 months ago
Hi @lorraine,
This is a great topic – thanks for starting the conversation! Primarily, I’d agree that the natural salt water that comes off the breeze oceanside is probably best, but I have also tried a salt room at a local “Rock Spa”. They have a salt room in the back with relaxing chairs, and the salt is diffused through the vents into the…[Read more]
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Denny posted an update 3 years, 9 months ago
@lorraine The 3 herbs are soup A, Soup B and LC Balancer. The contact at WEI Labs is Cassi at 612-808-9234. These herbs work! I am calling her today to order herbs for my overactive bladder and possible kidney issue. They are located in Minnesota.
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Charlene Marshall replied to the topic Responding to "How Are You Feeling" as an IPF Patient. in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 9 months ago
Welcome Christine!
Thank you so much for your reply, and trying to get in touch with Lorraine ( @lorraine ). I’ve tagged her here so she will see your note, thank you for taking the time to read it. Warmest regards, Charlene.
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Steve Dragoo replied to the topic Harmonica Class / Pulmonary Rehab in the forum Hobbies & Projects 3 years, 10 months ago
Had a didgeridoo years ago…
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Steve Dragoo replied to the topic Harmonica Class / Pulmonary Rehab in the forum Hobbies & Projects 3 years, 10 months ago
Hi – when I first saw you say deep resonant sound I thought of a didgeridoo. LOL I think the vibrations could be helpful in stimulating blood circulation too and that could help mitochondria and ATP. Hope it works for you.
Steve
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Steve Dragoo replied to the topic Harmonica Class / Pulmonary Rehab in the forum Hobbies & Projects 3 years, 10 months ago
Hi Lorraine,
If you google Buddy Greene harmonica, one search should show Buddy Greene – classical harmonica medley on YouTube. It is less than 5 minutes and was filmed at Carnegie Hall NYC just 6 months after 9/11. Hope you enjoy it.
Steve
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Linda Williams replied to the topic Harmonica Class / Pulmonary Rehab in the forum Hobbies & Projects 3 years, 10 months ago
@Lorraine – I saw on Amazon a kit of 5 harmonicas today & wondered why someone would buy but I guess each must be a progression up to being better. But we don’t want to be professionals at it do we? Probably about same price as pulmonic.
Linda Williams
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Linda Williams replied to the topic Harmonica Class / Pulmonary Rehab in the forum Hobbies & Projects 3 years, 10 months ago
@Lorraine it was of interest to learn about the other breathing method too if harmonica not work. Thanks for that info too. Sorry there are no Better Breathers Clubs near you. Linda Williams
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Linda Williams replied to the topic Harmonica Class / Pulmonary Rehab in the forum Hobbies & Projects 3 years, 10 months ago
@Lorraine – well, your first step in harmonica class is done. Hope it keeps getting to be more fun. I ordered a harmonica diatonic key of C today from Amazon, the music book you have and another that has videos too that shows how to proceed in learning. I am a better show me and let me learn by doing, thought if couldn’t find a class would at…[Read more]
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Charlene Marshall replied to the topic Harmonica Class / Pulmonary Rehab in the forum Hobbies & Projects 3 years, 10 months ago
Woah, that is awesome @lorraine and as you say, what great exercise for your lungs! I’m really curious to hear how the learning goes, good for you for taking on this new challenge. I also have longed to play an instrument – I tried guitar last year and it was very hard for me but you’ve inspired me to try again I think. Looking forward to hearing…[Read more]
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Steve Dragoo replied to the topic New Forum: Laser Therapy Results. in the forum Join the Discussion: Welcome to all PF/IPF Patients 4 years, 1 month ago
@lorraine – you sent me this and it is the reference I was speaking about earlier. – Steve
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Thank you Denny!
I will look into these herbs.
With appreciation and best wishes.
Lorraine