Luke R Matthews

How do we find out more ?

John, thank you very much for sharing. A ll best to you.

John, might you share your experience with all on this site? i certainly would be interested as I’m sure many more would.

thank you so much….

Hey Ben, I’m hesitant to try Wei because of the cost. What are the 19 veggie capsuls and the CL for two months?

Good morning all,

I just wanted to let all know that I am scheduled for he covid booster shot tomorrow October 1. After trying my respirologist and MD i called York Region Health Care Unit and booked the appointment on the phone! You need to be persistant with the choices on their email system!!

Allan, so sorry to hear this. I was hoping to try it!! I think I’ll wait until after my breathing tests in December and then re consider.

Charlene and anonymous, I used to be a one or two glass of red Italian wine almost every day. Since the IPF in September 2020 and the Esbriet I have reduced that to one 6 ounce glass 4 0r 5 times a week either red or white depending on the food. It is a little pleasure in life…..:):):)

Lnour, Ben, Pete, Jerry and William,

Thank you very much for this information. I live in Canada, in a suburb of Toronto. Is there anyone in Canada that will undertake this procedure, if any of you happen to live here and does anyone of you know the cost of the procedure(s)?

God bless you all, Carlo

Good morning all,

I have been on 9 Esbriet since November 2020. I have most I’d the side effects mentioned in this discussion chain. I have no idea about the effects of reducing the dosage would be but can suggest three things that seem to have helped with the nausea and fatigue.

1. I take the meds religiously with every meal at least 4.5 h…[Read more]

Hey Steve,

Thank you for the reply. What are you taking it for? What does it do for you?

Thanks again, Carlo

Hey Steve,

Thank you for the reply. What are you taking it for? What does it do for you?

Thanks again, Carlo

Hey Steve and Charlene, you both seem to very active and experienced in various matters relating to IPF. I am relatively new, being diagnosed September, 2020 and have been on Esbriet since then.

My original local respirologist retired in November last year and met a new one ( virtually) in March this year who thought that part of my lung issue…[Read more]

Interesting article on MLB. Hope to see more comments. I have not tried it.

condolences to family and friends.

I have not, but would love to hear from anyone who has. Does it reduce the fibrosis or only slow down the progress as Esbriet is supposed to?

Hi John, I wish I knew the answer to that. I was diagnosed about 8 months ago and have issues with shortness of breathe and nausea and fatigue. I did have carcinoid cancer in my upper right lung in 2012 so I have had CT scans at least annually since the. My recent diagnosis implied that the disease was there 5 or 6 years ago and has progressed to…[Read more]

Ben, good luck! Keep us all in the loop. I am considering more research on this Wei Labs stuff after CT scan and breathing test this month.