Forum Replies Created

  • mike-casey

    Member
    February 7, 2023 at 2:19 pm in reply to: Cost of Ofev

    Hi Deb,

    As Phil said you can contact BI Cares to receive the medication at no cost provided you do not exceed the earnings limit. I am on Medicare and do not pay for my OFEV.

    Best wishes, Mike

  • mike-casey

    Member
    May 3, 2022 at 7:53 pm in reply to: Telling your family

    Hi Michael, I think your children should know, for your sake as well as theirs. I was diagnosed with IPF in March 2020 and heard the terrible prognosis “3-5 years”. I made an appointment with the pulmonary department at the University of Michigan who confirmed my diagnosis of moderately severe IPF, but told me that 3-5 year expected life expectancy is outdated and started me on OFEV immediately. My wife was with me for both appointments and we decided after the second to tell my two daughters right away. I stopped working with the support of my employer and began spending as much time as possible with my children and grandchildren. It was difficult to talk about initially, but we got it out of the way and now I feel so blessed to have this time with them. Please don’t hesitate any longer, your children will help make the reality of this disease tolerable.