Pulmonary Fibrosis News Forums | Maka Rebagliati | Activity https://pulmonaryfibrosisnews.com/forums/members/makarebag/activity/ Activity feed for Maka Rebagliati. Tue, 21 Apr 2026 11:08:50 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 26376620b6cda437259de44fc7647ab7 Maka Rebagliati replied to the discussion transplant evaluation criteria in the forum Lung Transplantation https://pulmonaryfibrosisnews.com/forums/forums/topic/transplant-evaluation-criteria/#post-26943 Thu, 21 Jan 2021 17:46:07 -0600 Reply to transplant evaluation criteria

Hi Trish, thank you for sharing. My husband was approved for a transplant yesterday. He deteriorated rapidly between October and December. He went into hospital mid December and they told us that he did not meet the 6 minute walk requirement plus his age, he is 74. However they kept him in the hospital with a treatment of a corticoide… Read more

]]> cdc5e20d840e20b45db239d2ab6a7da4 Maka Rebagliati replied to the discussion Do others with IPF cough for 20 minutes every morning? in the forum PF Life: 50+ https://pulmonaryfibrosisnews.com/forums/forums/topic/do-others-with-ipf-cough-for-20-minutes-every-morning/#post-26249 Wed, 25 Nov 2020 19:32:01 -0600 Reply to Do others with IPF cough for 20 minutes every morning?

My husband suffers from iPF and he is now on oxygen. It is so sad seeing people looking at us with fear when he coughs even though they can see the oxygen tank and he wear a face shield. Actually we went to see our GP this morning and even though we were the only ones on the waiting area, one of the other assistants kept looking at us… Read more

]]> 9b681d58557825d0f40a3269571650d4 Maka Rebagliati replied to the discussion Do others with IPF cough for 20 minutes every morning? in the forum PF Life: 50+ https://pulmonaryfibrosisnews.com/forums/forums/topic/do-others-with-ipf-cough-for-20-minutes-every-morning/#post-26247 Wed, 25 Nov 2020 19:22:17 -0600 Reply to Do others with IPF cough for 20 minutes every morning?

Hello James, my husband is now in an advanced stafe of IPF and he coughs for at least 20 minutes in the morning which leaves him exhausted, he is on oxygen 24/7. Nothing seems to help but as Susan mentioned, he thinks it is related to post nasal drip. Actually today the GP gave him a prescription for nasal drops, hopefully they will… Read more

]]> 20694017b41356af1860f6e167a0fd8b Maka Rebagliati replied to the discussion DEALING WITH OFEV side effects in the forum PF Life: 50+ https://pulmonaryfibrosisnews.com/forums/forums/topic/dealing-with-ofev-side-effects/#post-26086 Tue, 10 Nov 2020 19:03:38 -0600 Reply to DEALING WITH OFEV side effects

Hello – I think your body might adjust somehow, try eating small amounts more often. My husband (74) recently switched from Esbriet to OFEV he is trying to eat something every  3/4 hours.  He is experiencing vomiting, has anybody experience this with OFEV? It is not related to what he eats, it just happens.

 

]]> 36be2b0b560d930e842dcd3edacf16a8 Maka Rebagliati replied to the discussion Afraid of the unknown in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/afraid-of-the-unknown/#post-25959 Thu, 29 Oct 2020 17:47:18 -0500 Reply to Afraid of the unknown

This is the first time I write something but I have been reading the news for a long time.
My husband was diagnosed with IPF by chance several years ago, they did an x-ray for something else and they discovered he had IPF.  He was taking Esbriet which worked very well until this year, now he is taking Ofev and he is on supplemental oxygen… Read more

]]> 787d6955601ab7a969432a8218ffac62 Maka Rebagliati became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/21539/ Thu, 30 Jul 2020 22:05:27 -0500 1