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Marsha

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@marshaharris

@wendyray @drandyhall @charlene-marshall Hi, Wendy! I just read your post about starting laser therapy and happily want to share my own laser therapy experience. First, please allow me to say that I understand your fears about the possible negative effect it might have on you, given that you are taking prednisone. I was on 5 mg. […] View
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  • Profile picture of Charlene Marshall

    Charlene Marshall replied to the topic Laser Treatment. Whats going on? in the forum Using Our Forums 3 years ago

    Hi Thom,

    Thanks for writing to us. Yes, the discussion on laser therapy has seemed to die down a little bit. I haven’t tried this myself yet, so unfortunately I can’t offer any personal insights but I think John ( @caneelbay) and @marshaharris can provide you with their experiences into laser and whether or not they are still seeking this…[Read more]

  • Profile picture of Charlene Marshall

    Charlene Marshall replied to the topic Nearly 40% of IPF Patients in the US Not Prescribed Esbriet or Ofev Despite Effectiveness, Study Reports in the forum Flash Briefings & Podcasts 3 years ago

    @marshaharris

    Hello my friend!

    So nice to hear from you, thanks for writing to us about this topic. That said, I’m really sorry to hear of your experience with that first Pulmonologist when you asked about Ofev and Esbriet…. my jaw dropped! I hope physicians read this article, and start focusing more on prescribing these anti-fibrotics because…[Read more]

  • Profile picture of Charlene Marshall

    Charlene Marshall posted a new activity comment 3 years, 4 months ago

    Hi Jennifer,

    No problem – I know it is not really a forum that any of us want to be on, as I wish for nothing more than a cure for this cruel disease. I’m sorry to hear about your father’s diagnosis. Dr. Hall is great and has been very kind in sharing information with this forum about laser therapy. I haven’t tried it, but a few folks on here…[Read more]

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  • Profile picture of Tom Pratt

    Tom Pratt replied to the topic Gabapentin For IPF-Related Cough? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 3 years, 4 months ago

    @marshaharris,  Thank you for your reply. I currently have a message in to my pneumologist asking about laser therapy.  Just  wondering, is anyone taking laser 4 treatment in the area of Greensboro or Winston Salem, NC?   I’m know that chiropractic offices in these cities have these lasers, but can’t find any mention of using them for fibr…[Read more]

  • Profile picture of Charlene Marshall

    Charlene Marshall posted a new activity comment 3 years, 5 months ago

    @marshaharris, just so well said! Thank you so much for sharing your experience with Wendy, I am sure it is greatly appreciated. I am so grateful to you and your willingness to share your experiences! Take good care my friend, love hearing from you 🙂
    Charlene

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    Steve Dragoo replied to the topic Laser Therapy Results in the forum Pulmonary Fibrosis Awareness & Advocacy 3 years, 6 months ago

    @marshaharris

    Terrific Marsha!

  • Profile picture of Charlene Marshall

    Charlene Marshall replied to the topic New Forum: Laser Therapy Results. in the forum Join the Discussion: Welcome to all PF/IPF Patients 3 years, 7 months ago

    Hi Linda,

    Great questions! I am hoping @drandyhall may be able to help answer some of your questions here, or maybe @marshaharris? Both are experienced in using laser therapy and may be able to help better than I can regarding insurance covering it and the payment process as Canadian healthcare is very different. Hopefully they can help 🙂

    Kind…[Read more]

  • Profile picture of Charlene Marshall

    Charlene Marshall replied to the topic Laser Therapy Results in the forum Pulmonary Fibrosis Awareness & Advocacy 3 years, 8 months ago

    Sending you lots of love and best wishes @marshaharris! It is always so nice to hear from you, and you are so eloquent in your writing and kind words that it just brightens my day 🙂 Goodluck with your chat with Dr. Cebek on the 15th, I’m curious to hear what he says. Do you mind reporting back?

    Best wishes!
    Charlene.

  • Profile picture of john styles

    john styles replied to the topic Laser Therapy Results in the forum Pulmonary Fibrosis Awareness & Advocacy 3 years, 10 months ago

    Congrats Marsha ( @marshaharris ) !  It is comforting to here of your good results.  I have also experienced the same results, more energy and and an up tick in the pft results. What is your schedule of treatment? I am doing about 1 treatment every 5 days, for example if I do a treatment on Wednesday, I then do a treatment on Monday and then F…[Read more]

  • Profile picture of Charlene Marshall

    Charlene Marshall replied to the topic Laser Therapy Results in the forum Pulmonary Fibrosis Awareness & Advocacy 3 years, 10 months ago

    Oh my gosh @marshaharris, I am so happy to hear from you and thrilled to read this news! Congratulations on table results since January, that is excellent. @drandyhall, did you see Marsha’s update? So wonderful that not only do your numbers reflect stability, but how you feel has improved too. Amazing news Marsha, thank you for sharing that with u…[Read more]

  • Profile picture of Charlene Marshall

    Charlene Marshall posted a new activity comment 3 years, 11 months ago

    I couldn’t agree with you more @drandyhall! I am so happy for you @marshaharris and so glad you’re able to do more around the house, even with your 02 and most importantly of all, that you feel your life is more fulfilling than ever before. Thank you so much for sharing this with all of us; it warmed my heart and I am so grateful that you’re…[Read more]

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  • Profile picture of Charlene Marshall

    Charlene Marshall posted a new activity comment 3 years, 11 months ago

    Hi @marshaharris,

    So great to hear from you! Really happy to hear that you’re feeling much better, and really hope that your PFT went well this past week. I love your mantra, great thing for all of us to remember and I hope it helped you feel a little less anxious for your tests. Eager to hear the news, hoping it is good! Thank you again for…[Read more]

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  • Profile picture of Charlene Marshall

    Charlene Marshall posted a new activity comment 3 years, 11 months ago

    Good morning @marshaharris, thanks so much for writing but so sorry to hear of the stubborn head cold my friend. Take good care of yourself to ensure it doesn’t travel into your lungs! I guess getting a cold can be part of welcoming spring, huh? Many of my colleagues also seem to have it right now and I am doing my best to stay healthy as I am…[Read more]

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  • Profile picture of Charlene Marshall

    Charlene Marshall posted a new activity comment 3 years, 12 months ago

    Hello my friend @marshaharris! Thank you so much for writing to both Andy and I – it is wonderful to hear from you, as always! So glad laser continues to go well for you, and I am hopeful that the PFTs reflect some good news. Sounds like the timing will be ideal now that you’ve finished your 12th round of laser. Wishing you goodluck with it my…[Read more]

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  • Profile picture of Charlene Marshall

    Charlene Marshall replied to the topic Laser Therapy Part III in the forum Pulmonary Fibrosis Awareness & Advocacy 4 years ago

    Just chiming in here to tag Marsha ( @marshaharris ) for you Leontis. Sometimes the forum threads get too big and difficult to follow 🙂

    Charlene

  • Profile picture of Charlene Marshall

    Charlene Marshall replied to the topic Natural Relief for Mucus in the Lungs? in the forum Living with Pulmonary Fibrosis: 50+ 4 years ago

    I will stay there with you @marshaharris! Australia is such a beautiful country, and their amazing coffee is just one of the perks of being there. Ah, wouldn’t that be amazing if we could actually go and have coffee on the beach. Are you a beach lover?

    This is one of my favourite spots among the northern beaches of Sydney! Isn’t it…[Read more]

  • Profile picture of Charlene Marshall

    Charlene Marshall replied to the topic Natural Relief for Mucus in the Lungs? in the forum Living with Pulmonary Fibrosis: 50+ 4 years ago

    Hi @marshaharris,

    So nice to hear from you, thanks so much for contributing your thoughts to this topic! You know? I didn’t even think about the acidity that can be found in pineapple, and how this might be problematic for those with GERD/acid reflux issues, very important to remember so thank you for bringing that up! I’m curious to hear if it…[Read more]

  • Profile picture of Charlene Marshall

    Charlene Marshall replied to the topic Laser Therapy Part II in the forum Pulmonary Fibrosis Awareness & Advocacy 4 years ago

    So glad I can be of help anytime @marshaharris! Happy Saturday – are you up to anything fun this weekend? As for my coffee, I am pretty boring and just enjoy a dark roast blend of coffee with some cream 🙂 How about you? Oh maybe someday we could all figure out a way to get together and meet in person…. I know I’d sure love that. For now, this…[Read more]

  • Profile picture of Charlene Marshall

    Charlene Marshall replied to the topic Laser Therapy Part II in the forum Pulmonary Fibrosis Awareness & Advocacy 4 years ago

    Wouldn’t that be amazing if we could grab coffee and chat in person @marshaharris? Maybe some day .. 🙂

    So glad you’re finding the forums, and the information shared beneficial. Do keep us posted on how you continue to do with the laser therapy. The sun is shining here today for you, Marsha. Wishing you nothing but the best always.

    Hugs,
    Charlene.

  • Profile picture of Charlene Marshall

    Charlene Marshall replied to the topic Laser Therapy Part II in the forum Pulmonary Fibrosis Awareness & Advocacy 4 years ago

    Hello @marshaharris,

    So nice to hear from you! I was wondering if you’d been offline because you’d been trying laser. I am so glad you found some support for this, and have been through a couple of treatments 🙂 I am so glad you’re also comfortable with the Dr. and his team, I think that is so important. It gave me goosebumps that you alluded to…[Read more]

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