In addition to ILD, also have severe osteoporosis to the point that I recently had a compression fracture of T6/7, causing me to hunch over and severely compromising respiratory capacity. Am on a low dose oxycodone every 6 hours (which I do take) but any exertion causes pulse ox to drop although I do recover.

Had an epidural for the nerve… Read more

I am in year 2/3 of IDF (formally diagnosed), probably longer with increased shortness of breath, cough, etc. Was going along reasonably well until had some chest discomfort and increased shortness of breath. I also have severe Osteoporosis and have within the past month sustained two compression fractures of L2 and T11. The pain has… Read more

I try to do what I can – which is not much. Have just engaged a housecleaning service to come once a month to do the ‘heavy’ cleaning – bathroom, kitchen, vacuuming. I can still do my dishes, put laundry in and fold. But I do find I tend to have piles  of clean clothes on the bed instead of putting into a drawer. Am dealing not  only with IPF… Read more