[maurice77]

Hi,

I do not want to sit on the chair of a doctor, and I hope that you inform yourself on taking medications. I would however want to point out that your dosis with 2x 60 mg is higher than what was used in the chinese study where 7,5 – 15 mg/day was used.

So I hope your doctor is willing to look together with you on the advised dosis.

Good luck!

[maurice77]

Hi Patricia,

You are right, that’s why I put a question mark in the title of the subject.

Maybe “treatment” or “possible cure” is better.

The research does show a certain degree of breakdown of fibrotic tissue in the lungs, if it restores to normal functioning lung tissue is not clear to me.

regards,

[maurice77]

Hi Larry,

You are right, some preliminary results of small tests are often hyped in the media. And one should better wait until the results of large trials are done.

However my mother doesn’t have the time to wait a couple of years. And probably the pharmaceutical industry is not very eager to spend millions of dollars on research on pills which costs nearly nothing. Or they take it from the market and sell it again for a fortune afterwards, if proven effective.

[maurice77]

I ordered the pills instead of liquid version.

https://www.docmorris.de/hustenstiller-ratiopharm-dextromethorphan/09230807

docmorris.de

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[maurice77]

Thanks,

I read a lot of the news articles from the past weeks.

The one from china I posted is also quite interesting, however it is based on a small group of patients.

[maurice77]

Hi Samuel,

The Benzonataat is only used as cough represssent and doesn’t improve the fibrosis as far as I can see.

The pneumologist is not very open for discussion. They just follow protocol, and you should be happy to receive the costly anti-fibrotic medication.

We checked any cross interference with other medication she is on, and there isn’t.

It is also no option to wait for the Heidelberg phase 2 trial, it hasn’t started yet and you still have the chance that you end up in the placebo group.

My mother just turned 75 and is 24/7 on 4,5L/mi of oxygen.

We just give it a try for the coming months with 15 or 30mg per day. This is quite a low dose since the max daily dose is 120mg/day. She has a check up every 3 months, we’ll see how it goes.