Biography

Name

Marilyn Burns

Nickname

marilyn-burns

Relationship

Family

Short Bio

I read this forum on behalf of my husband who has IPF, as he does not use the computer nor the internet.  He is 80 years old, diagnosed a year and a half ago, but with information from past chest scans for pneumonia, has probably had IPF at least 5 years or more.

Type of Diagnosis

IPF

Treatment / Medical Facility

National Jewish Hospital, Denver, CO

Current medication regimen

Began Ofev a year ago, but had to discontinue in January due to catastrophic medical issues: emergency colon surgery, followed by two heart attacks, then pneumonia.

Supplemental Oxygen

yes

Are you currently taking an anti-fibrotic medication?

no

How did you find us?

PF News Website

How long have you or the person that you are caring for had PF?

Finally diagnosed one year ago; doctors think probably 5 years or more.

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