Maureen,

One more thing. Someone asked whether you had a lung biopsy. I want to make sure you know that open lung biopsy is not needed for diagnosis now. There is something called Envisia Genomic Classifier. This is done on tissue taken from the lungs during bronchoscopy. Then,  in conjunction with HRCT pulmonologist can diagnosis IPF… Read more

Maureen,

My oxygen saturation is normal just sitting still,  but will drop into the 70’s within a minute or two during the 6 minute walk. Nobody allows me to walk longer than that during walk… before they stop me and strap on oxygen, so hard to know how low it might go.
My sleep study was about 3-4 years ago and ended up being an at home… Read more

Maureen,

I ached everywhere prior to my diagnosis, shoulder, wrist, arms, legs, back, etc. I had two episodes, one more severe than the other, of seriously painful muscle cramping in my thigh which eventually radiated to my lower leg. Was burning around my knee during sleep and when I woke could barely walk resulting in other injuries to knee… Read more