Everyone’s experience is different, as noted previously.  It is important to stay as healthy as possible, including exercise, maintaining normal weight, good nutrition and correction of any metabolic illnesses including abnormal cholesterol and diabetes.  It is helpful to have a pulse oximeter to check blood oxygen saturation (they are available… Read more

The pulmonologist told me that I was expending an additional 400-600 calories a day just from the work of breathing harder.  Also when breathing harder one also gulps in more air which make stomach and bowel feel fuller and can further increase work of breathing.  Oxygen obviously helps and also pacing one’s activity and rest.  Weight loss was… Read more

I was diagnosed with IPF in 2017 and did well for two years. I couldn’t tolerate OFEV or esbriet. Late 2020 I started going down hill rapidly, so at age 68 was evaluated for transplant. I had a single lung transplant and a complicated 45 day hospital course and was discharged with a feeding tube and bipap machine. The feeding tube was removed… Read more