miltont
Forum Replies Created
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Dr Don, are you happy to have a conservation with me about a proposed double blind trial for a non-medical treatment that I have been using to great effect? If so please email me at [email protected].
Cheers and thanks in anticipation
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Hi everyone. I am not on Ofev but reading all your stories reminds me that I keep a container of ginger gums in the glovebox of my boat for anyone who gets seasick and they work. Chewing one is isually enough. Try your supermarket or health food shop. Natural ginger also works but is a bit strong for a lot of palates.
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I have a high degree of “not giving a damn ” I guess but I am not the slightest bit self-conscious about wearing a mask. If I need to protect myself that is my business and no-one else’s. Be strong, people. You must care for yourself.
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@catyoung
That eastern medicine sound appropriate for treating cystic fibrosis.
@rjshank
Richard, I had the lump in the throat and the soreness to breathe until my GP put me on a PPI (proton pump inhibitor) to suppress the manufacture of stomah acid. It worked. Ask your doctor if this could be your problem.
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miltont
MemberMarch 20, 2020 at 6:46 am in reply to: Sharing Your IPF Story: How Do You Feel About It?I am a very pragmatic person. I face up to and handle reality very well. I don’t mind sharing. However, when I got the news and was told that at 79 I had an expectancy of 1 – 3 years without a transplant and I found that the oldest transplant approval was aged 72 I was deeply shocked. My wife was in the same hospital having just had a major section of bowel removed because of cancer. I went from Emergency to visit her but there was no way I could tell her. It took weeks. I did not tell my kids and grandkids for 3 months, after the next lung function test showed that I had stabilised at 75%, so I felt that the prognosis may have been a bit severe. The question was how to tell them. At a family gathering was deemed inappropriate as it would destroy the occasion. That said, they had to find out virtually at the same time so no-one would be offended. Eventually I got on the phone. Very difficult. Sharing with associates was heaps easier but last week at a dementia sufferers’ group that I lead I was,asked to explain my emotions – how I felt when I got the news. Thst was very hard and depressed me for two days. That is enough from me.
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@mark-koziol
Well done, Mark. I woould like to add some explanation of the scarring problem and also an alert to a new drug to slow progress. I have been studying and treating scarring since 2005 with 100%. What happens and why exercise has to be treated cautiously is this. When the body sustains an injury, it takes some Collagen – the most abundant protein in the body – out of either its liquid or plastic form and makes microscopic solid fibres and weaves a mat through the injury site. This holds it together while it heals. The Collagen fibres have a tensile strength of about 2000 times that of steel, so are effectively inelastic. When you exercise and stretch the normal tissue, the Collagen will not move and so further tearing of normal tissue occurs and the scar length increases. This is what causes athletes to retire with chronic muscle tearing.
On the second note there is a new drug soon to go on a World trial. Volunteers are being sought at the moment. It has so far only been tested on less than 150 IPF sufferers. Reportedly it had zero side effects and was better at slowing the progress than the exising drugs. I was asked to volunteer for the trial but because I had very recent bladder cancer I was rejected. Bugger.
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miltont
MemberMarch 13, 2020 at 7:01 pm in reply to: Back Muscle Shrinkage Tied to Poor IPF Outcomes, Study FindsI have never heard of this before but I do have a constant fight with the psoas muscles in my back. These are the muscles over the kidneys and when sore, sometimes have sufferers complain of kidney pain. I would never have associated it with IPF but it makes sense, since the timing of IPF symptoms (pre diagnosis) and this particular back problem are coincidental. I stretch these several times a day and if I don’t I quickly develop a stoop, back pains and a loss of height. Curious. Might be linked to the dry cough.
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My Wife and I have not changed our lives. My children and grandchildren keep urging us to stay indoors but that is not going to happen. I wore a P2 rated mask to screen out smoke during the recent bushfire crisis here in Victoria and NSW which was prudent but I don’t wear one now. I always practise good hygiene, washing my hand when I cone hom I and use the hand sanitisers when visiting and leaving hospitals and urge everyone to do the same. Eventually COVOD19 will be as common as the cold or more so I expect but what we have to try to do is stop s massive overload of the health care systems by slowing its progress.
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Thanks to Lorraine for forwarding the hints to help prevent infection. I was going to do the same but my access had crashed. The only thing else that I re all the original author saying wad that you touch your mouth or nose on average more than 90 times a day. As he wrote and as Charlene noticed, wearing blue latex gloves reminds you not to touch your face.