Pulmonary Fibrosis News Forums | MSolo | Activity https://pulmonaryfibrosisnews.com/forums/members/msolo/activity/ Activity feed for MSolo. Mon, 27 Apr 2026 14:28:41 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 c2916342546605453d52af87b21afec2 MSolo replied to the discussion Diagnosis of IPF in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/diagnosis-of-ipf/#post-35033 Sun, 14 May 2023 20:49:40 -0500 Reply to Diagnosis of IPF

I am not hoping for a diagnosis of IPF, its just that they told me initially it was IPF . Given my brother has it and looking back possibly my grandfather, my biology seems to indicate this. I want to be part of a clinical trial (as something to live for).   But I like the idea of a second opinion. Thank you.

]]> d083032fdcdaec8e685ed6e47b0defda MSolo replied to the discussion Diagnosis of IPF in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/diagnosis-of-ipf/#post-35018 Sat, 13 May 2023 13:43:33 -0500 Reply to Diagnosis of IPF

I had a CT scan and they said at the time it looked like IPF but gave me a diagnosis of ILD. I cant take part in any IPF Clinical Trials with the ILD diagnosis. I am ask why I have the ILD diagnosis and they are telling me because I would need a biopsy to confirm IPF. My brother has this also and never had a biopsy. I guess that I am doing… Read more

]]> 99c54b7e5664f0f96a978bda84f608f1 MSolo started the discussion Diagnosis of IPF in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://pulmonaryfibrosisnews.com/forums/forums/topic/diagnosis-of-ipf/ Thu, 11 May 2023 12:59:22 -0500 Diagnosis of IPF

How do people get a final diagnosis of IPF? I have ILD, my brother has IPF. You cant get in a clinical trial for IPF without a diagnosis. My doctor does not recommend the biopsy since it has potential harmful side effects. (I guess my condition is not bad enough yet.) So, how do people get diagnosed? Is the biopsy the only way to diagnose this condition?

]]> 393ab4ff490a7c848dd1c7a4431d7448 MSolo became a registered member https://pulmonaryfibrosisnews.com/forums/activity/p/38614/ Wed, 10 May 2023 13:59:45 -0500 1