Biography

Name

Dev
Nickname

newatthis
Year of Birth

1955
Gender

Female
Location

USA
Relationship

Caregiver
Short Bio

Caregiver for pulmonary fibrosis family member
Type of Diagnosis

IPF
Treatment / Medical Facility

Hospice
Lung transplantation status

ineligible
Supplemental Oxygen

yes
Best advice for PF symptom management

When you are getting close to 10L/minute on your home oxygen concentrator. Get ready to buy 2nd 10 L/minute same concentrator.  Buy plastic  “Y” attachment  ( bought a few sizes from amazon to ensure i got one that would fit. Then connect both tubings. Set bith concentrators and their water bottle on each to same oxygen setting. (example, 6 and 6 to get 12). This will give you more oxygen to enable you to get around the house better. It works but you may not hear of it from your doctor. I learned from pulmonary fibrosis warriors in USA.
Are you currently taking an anti-fibrotic medication?

no
How did you find us?

Friend
How long have you or the person that you are caring for had PF?

2 yrs
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