Forum Replies Created

  • Brian Davy

    Member
    December 3, 2022 at 11:36 am in reply to: Heal scar tissue – Is it possible? 2nd zoom call

    could you send me the zoom link

    Brian Davy.

     

  • Brian Davy

    Member
    November 27, 2022 at 12:57 pm in reply to: Heal scar tissue – Is it possible? 2nd zoom call

    Can you send a copy of the Zoom meeting ,I thought it was on Dec 1st but it was last Thursday

     

  • Brian Davy

    Member
    November 27, 2022 at 12:54 pm in reply to: Heal scar tissue – Is it possible? 2nd zoom call

    Can you send me the link for the zoom call

    Brian Davy

     

  • Brian Davy

    Member
    December 28, 2021 at 9:59 am in reply to: Prospective change of meds: OFEV to Perfenidone

    I was on Ofev 150 mg for 2 years then changed to 100mg but still had bad stomach problems ,although after 3years it showed the progression had slowed down which I was happy with but after another year it had progressed so this year in October they changed me over to Perfenidone and so far my stomach has been back to normal,i  still have a bad cough

    I am a golfer so the sun could be a problem ,had no nausea so far so time will tells am also on oxygen

    Brian

     

  • Brian Davy

    Member
    September 9, 2021 at 9:30 am in reply to: Ofev Users can Safely take Ofev on a Long Term Basis

    I have been on Ofev for about 3 years ,initially I was taking the 150 mg but it was hard on the stomach ,reduced the dosage to 100mg twice a day still have some bad days but it is a lot easier on the stomach

    My last results showed that it had slowed the progression so happy with that !!!

     

    Brian

  • Brian Davy

    Member
    September 9, 2021 at 9:24 am in reply to: Dealing with Side Effects

    I have been taking gabapentin for a few years now ,it was prescribed for a cough

    Cough comes and goes depending on the time of year and weather

  • Brian Davy

    Member
    August 31, 2021 at 9:22 am in reply to: Passing along what is working for me.

    I have been on Ofev  for the past 3 years ,was initially taking 150 mg twice a day was ok for the first 2 years then went down to 100mg  and its easier on the stomach

    I am pleased to say that my last C T scan showed that the progression had slowed

    Also taking Gabapenton for my cough, also seems to help