Pulmonary Fibrosis News Forums logo
  • Home
  • About Our Forums
  • Forums
  • Groups
  • Members
  • Activity
  • Search
  • What can we help you find today?

Noah Greenspan

Home Members Noah Greenspan
show less show more
Profile picture of Noah Greenspan

@noah-greenspan

  • Activity
  • Profile
  • Friends 2
  • Groups 0
  • Forums
  • Articles
  • Personal
  • Mentions
  • Favorites
  • Friends
  • Groups
  • Profile picture of Charlene Marshall

    Charlene Marshall replied to the topic When You Don't Want to Talk About PF Appointments in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 week, 3 days ago

    I’m sorry to hear that they don’t Jeannine. Know that we are here for you on these forums!
    Take care,
    char.

  • Profile picture of Charlene Marshall

    Charlene Marshall replied to the topic When You Don't Want to Talk About PF Appointments in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 week, 3 days ago

    I’m sorry to hear that they don’t Jeannine. Know that we are here for you on these forums!
    Take care,
    char.

  • Profile picture of Charlene Marshall

    Charlene Marshall replied to the topic When You Don't Want to Talk About PF Appointments in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 week, 3 days ago

    Gayle, I love the ending to this post as it made me laugh. Thank you! Puppies are the best and I’m glad he’s become a positive topic of conversation for you 🙂
    Take care,
    Char.

  • Profile picture of Charlene Marshall

    Charlene Marshall replied to the topic When You Don't Want to Talk About PF Appointments in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 week, 3 days ago

    Hi Julia,

    Thanks for sharing your thoughts on my post … I completely agree: talking about the disease all the time is tiring both emotionally and physically and its hard to convey just how serious it is. Hang in there and know that we’re hear for you on this forum.
    Charlene.

  • Profile picture of Charlene Marshall

    Charlene Marshall started the topic When You Don't Want to Talk About PF Appointments in the forum Join the Discussion: Welcome to all PF/IPF Patients 1 week, 5 days ago

    For the last few days, I’ve been in a really strange mood. I had a pulmonology appointment last Wednesday which did not go well, so perhaps I am processing that information and I’ll come around. For now though, I’m not wanting to talk about that appointment or the specifics of it, and I’m finding myself irritable with friends and family…[Read more]

  • Profile picture of Charlene Marshall

    Charlene Marshall replied to the topic Handling Power Outages While Using Supplemental 02 in the forum Living with Pulmonary Fibrosis: 50+ 2 weeks ago

    @zebra4018

    Hi Mille,

    Thanks for sharing – sounds like you’re well-equipped to handle power outages while using oxygen, which is great. I’m you’ve notified your service providers too, that is a step a lot of people forget. One other thing that eases my mind, which people maybe don’t think of, is accessing the car as a power source for our 02…[Read more]

  • Profile picture of Charlene Marshall

    Charlene Marshall replied to the topic Portable Oxygen for Paddling in the forum Using Our Forums 2 weeks ago

    @gefki

    Hi Glenn:

    I was very intrigued by your post as I am an avid watersports fan as well. I enjoy kayaking and paddleboarding, though I run out of breath while trying to keep my balance standing on the paddleboard; its just as fun sitting down or kneeling. I take my oxygen with me on both devices! I use a D-sized cannister (the new term for…[Read more]

  • Profile picture of Charlene Marshall

    Charlene Marshall started the topic Handling Power Outages While Using Supplemental 02 in the forum Living with Pulmonary Fibrosis: 50+ 3 weeks, 1 day ago

    As you can imagine, losing power for an extended period of time is very anxiety provoking when you require supplemental oxygen to breathe. Many of us living with idiopathic pulmonary fibrosis (IPF) have access to both 02 tanks and portable oxygen concentrators (POCs). The former doesn’t require power to operate, although they don’t last long…[Read more]

  • Profile picture of Charlene Marshall

    Charlene Marshall started the topic Humidity & IPF in the forum Canadians Living with Pulmonary Fibrosis 3 weeks, 5 days ago

    I think one of the hardest things about living with idiopathic pulmonary fibrosis (IPF) is the fact that it affects everyone differently. It is really helpful to be able to speak with other patients on platforms such as this one because inevitably we share common experiences; however, there are often differences too.

    I was recently talking…[Read more]

  • Profile picture of Charlene Marshall

    Charlene Marshall replied to the topic Zinc in the Role of Lung Fibrosis in the forum Pulmonary Fibrosis Awareness & Advocacy 4 weeks ago

    Hi Jane,

    Thanks for contributing your thoughts and experiences to this thread; lots of information shared here about Zinc. I’m glad to hear your doctor encouraged you to try it, as their seems to be mixed physician thoughts on its use. Also glad to hear you’re tolerating Esbriet – I know the gastrointestinal issues can be really bad from Ofev.…[Read more]

  • Profile picture of Charlene Marshall

    Charlene Marshall replied to the topic Is My Disease Worsening? in the forum Living with Pulmonary Fibrosis: 50+ 1 month, 1 week ago

    Thanks for sharing your experience Dennis and wishing you goodluck on your upcoming breathing test. I have one at the end of July too! Campfire smoke bothers me a lot as well, and I always have to sit downwind of it if I join my cousins around the fire at the cottage. Glad to hear you think Ofev is helping you though! Have you tried the sublingual…[Read more]

  • Profile picture of Charlene Marshall

    Charlene Marshall replied to the topic Is My Disease Worsening? in the forum Living with Pulmonary Fibrosis: 50+ 1 month, 1 week ago

    @vmcurrie62

    Hi Virginia,

    Thank you for being so vulnerable and brave with sharing how this disease is impacting you. I hate it too, and I’m so sorry you’re dealing with it!
    Earlier today someone told me that it was refreshing to simply hear someone say they hate IPF and it was equally therapeutic for me to say. Please don’t ever feel like you…[Read more]

  • Profile picture of Charlene Marshall

    Charlene Marshall replied to the topic Is My Disease Worsening? in the forum Living with Pulmonary Fibrosis: 50+ 1 month, 1 week ago

    Hi @sharonmacmillan

    Thank you so much for sharing this information, I have no doubt that it will be extremely helpful for others! I really appreciate having this information myself too, so thank you.
    Charlene.

  • Profile picture of Charlene Marshall

    Charlene Marshall replied to the topic Is My Disease Worsening? in the forum Living with Pulmonary Fibrosis: 50+ 1 month, 1 week ago

    Well said Norm! I find this forum so helpful because its filled with people who truly “get it” and what its like to live with this terrible disease.

    Please don’t anyone feel like you have to apologize for venting – we’re here for you!
    Char.

  • Profile picture of Charlene Marshall

    Charlene Marshall replied to the topic Is My Disease Worsening? in the forum Living with Pulmonary Fibrosis: 50+ 1 month, 1 week ago

    Hi Phil,

    I often have trouble sleeping but its because my mind races vs. symptoms of this pesky illness. I actually take a melatonin – very low dose – every night to help me sleep and shut my brain down. Mindfulness helps me too; not for everyone but something that is effective for me. May be worth talking to your doctor about in case its somehow…[Read more]

  • Profile picture of Charlene Marshall

    Charlene Marshall started the topic Is My Disease Worsening? in the forum Living with Pulmonary Fibrosis: 50+ 1 month, 1 week ago

    Despite being diagnosed with idiopathic pulmonary fibrosis (IPF) in 2016, I’ve really only noticed an increased sensitivity to secondhand smoke in the last couple of years. I have written about this a couple of times in the following columns: Protecting Yourself from Secondhand Smoke and How to Help When PF-related Trauma Shows Up Unexpectedly.…[Read more]

  • Profile picture of Charlene Marshall

    Charlene Marshall replied to the topic Zinc in the Role of Lung Fibrosis in the forum Pulmonary Fibrosis Awareness & Advocacy 1 month, 2 weeks ago

    I am also curious about this Charles, and would love to hear from anyone who has spoken with their physician about zinc.
    Char.

  • Profile picture of Charlene Marshall

    Charlene Marshall replied to the topic Zinc in the Role of Lung Fibrosis in the forum Pulmonary Fibrosis Awareness & Advocacy 1 month, 2 weeks ago

    Oh interesting @philipryan… I am also curious as to why she advised against it? Did she give you any insights into that?
    Char.

  • Profile picture of Charlene Marshall

    Charlene Marshall replied to the topic Generic Version of Esbriet Available in the US. in the forum Esbriet (Pirfenidone) 1 month, 2 weeks ago

    @pbesio

    Hi Pete,

    Wow, thank you so much for sharing your experience with the generic version of Esbriet and the respective costs; it’s always so helpful to hear a first-hand experience. I hope this number reflects the real cost on the bill as well! So happy for you with the reduction of this astronomical cost for this drug.

    Char.

  • Profile picture of Charlene Marshall

    Charlene Marshall replied to the topic Mental Health & Chronic Illness Advice in the forum Living with Pulmonary Fibrosis: 50+ 1 month, 3 weeks ago

    Thanks for sharing your story with us, Nina! I’m glad you sought out a second opinion from another doctor as well as I was shocked to read one actually gave you a year you’d likely live until – that’s absurd in my opinion. Glad the second doctor was so helpful and that you proactively took care of yourself by doing things like putting in the swim…[Read more]

  • Load More
Profile Photo Barbara Switzer Profile Photo Lyle Schoelkoph

Login

Register

Search forums

Generic selectors
Exact matches only
Search in title
Search in content
Post Type Selectors
Search in posts
Search in pages

Who’s Online

There are no users currently online

Newest Topics

  • Toolkit for the Newly Diagnosed by Christie Patient
  • Sam’s Tips for Traveling with O2 by Christie Patient
  • Hyperbaric oxygen therapy by Natalie Mondor
  • Stem cell treatment experiences by John M
  • Rolling cart by Jacqui

Recent Replies

  • When You Don’t Want to Talk About PF Appointments
  • Stem cell treatment experiences
  • Toolkit for the Newly Diagnosed
  • Stem cell treatment experiences
  • Sam’s Tips for Traveling with O2

Members

Newest | Active | Popular
  • Profile picture of Jacqueline Meisinger
    Jacqueline Meisinger
    Active 2 hours, 32 minutes ago
  • Profile picture of Neha
    Neha
    Active 2 hours, 36 minutes ago
  • Profile picture of Jill
    Jill
    Active 3 hours, 14 minutes ago
  • Profile picture of Margaret
    Margaret
    Active 3 hours, 45 minutes ago
  • Profile picture of Phil Ryan
    Phil Ryan
    Active 4 hours, 3 minutes ago

Forums

  • Coronavirus (COVID-19) and Pulmonary Fibrosis
  • Healthy Recipe Sharing
  • Hobbies & Projects
  • Polls & Quizzes
  • Using Our Forums
  • Flash Briefings & Podcasts
  • Join the Discussion: Welcome to all PF/IPF Patients
  • 30 Days of PF
  • In Loving Memory
  • Wednesday Wins
  • Diagnosis​ ​Information​ ​and​ ​General​ ​Questions
  • Caregivers and Spouses
  • Employment & Pulmonary Fibrosis
  • Clinical Trials
  • Research and Development
  • Esbriet (Pirfenidone)
  • Ofev (Nintedanib)
  • Canadians Living with Pulmonary Fibrosis
  • Pulmonary Fibrosis Awareness & Advocacy
  • PF Caregivers, Family Members & Spouses
  • Living with Pulmonary Fibrosis: 50+
  • Pre/Post Lung Transplant
  • Young Adults Living with Pulmonary Fibrosis (40 & Under)
  • Upcoming Medical Appointments: Q&As
  • Most popular topics
  • Topics with no replies


Pulmonary Fibrosis News Today

BioNews Services, LLC
3 W Garden St
Suite 700
Pensacola, FL 32502
Email: [email protected]
Phone: +1-800-936-1363
  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy

Disclaimer

Pulmonary Fibrosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

BioNews, Inc.

3 W Garden St
Suite 700
Pensacola, FL 32502
Website: bionews.com
Email: [email protected]
Phone: 1-800-936-1363

  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy
Disclaimer

This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Copyright © 2017-2022 All rights reserved.

©2022 KLEO Template a premium and multipurpose theme from Seventh Queen

CONTACT US

We're not around right now. But you can send us an email and we'll get back to you, asap.

Sending

Log in with your credentials

or     Create an account

Lost your password?
Verify you are not a robot

Forgot your details?

I remember my details

Create Account

Verify you are not a robot