Noah Greenspan

Hi Karen,

So nice to hear from you! Thanks for sharing with us what is helping keep you busy during this time. I should pick out my knitting needles and try to re-learn this. I have so many crafty projects I want to try and pick up during this time! I also have a guitar I swore I’d try to learn but haven’t yet, maybe I should try this as well?…[Read more]

LOVE all these suggestions @lorraine ! I am sure many others will benefit as well, and connecting to your silly 8 year old self – how perfect. We all need to remember laughter, goofiness and youthfulness throughout this crazy time. Zoom is such a God send isn’t it? I love being able to use it as well. Maybe I can create an opportunity for a PF…[Read more]

Hi @craftyone ,

Judy it is on my list to learn some basic sewing projects! I will let you know how I make out with that, but right now I am focusing on one day at a time, like you. I’ve been doing a lot of “DIY” projects to keep me busy and very thankful I have a number of quiet or indoor hobbies that I can still do while being isolated. I am…[Read more]

Hi Joe,

Nice to hear from you – you raise some really good discussion points and questions regarding the relationship between heart disease and IPF. Logically I agree, it makes good sense, though it is of course most unfortunate for those of us already suffering from a lung condition. Are you/have you been followed by cardiology since your…[Read more]

@gmabankeraol-com

Hi Eleanore,

It’s so nice to hear from you – indeed, it has been a long time! Thanks so much for writing to me. The COVID-19 outbreak has been scary, and anxiety-provoking for me as I’ve been in/out of hospital and thus, worry about exposure. The nurses are so cautious not to transmit it, but you can’t help but worry when…[Read more]

Staying in sure can be boring @craftyone , I agree! However, most important for us right now and safety first for those with compromised lungs. I am so glad your children can get what you need for you. What about online shopping? I’ve done that a few times, not gone crazy or anything but it is nice to be able to still have the option.

Be well,

Charlene.

Hi Susan,

Thanks so much for sharing this link with us as well, I know so much information is out there about how this virus can be transmitted. It is hard to keep track of it all! I’ve been uncertain about whether or not to wipe down groceries/packages that come in the mail, and like you, the process is exhausting and seems daunting. I wipe…[Read more]

@davidota

Thank you so much for your kind words – they really mean a lot to all of us! We consider ourselves (Mark and I) to lucky to be able to interact with such a special community on this platform. Hearing that people are benefitting from it means the world to us. We so appreciate you and your contributions, thank you for brightening my day…[Read more]

Hi Bob,

So nice to hear from you, thanks for writing to us. Isn’t that the truth – finding ourselves in the middle of a nightmare! I think daily of my fellow IPF/ILD patients, and hoping everyone is taking extra caution and being as safe as possible. I’m glad you’re back home on Canadian soil – did you drive back? The numbers in the US is very…[Read more]

Hi Kenneth,

So nice to hear from you my friend, thanks for writing! I have indeed received your message, and thank you for the update on Delores. I’m glad to hear she didn’t have the PAH gene, that is good. Did the new diagnosis of interstitial lung disease (ILD) change the trajectory of any treatment or anything for her? I get annual checks on…[Read more]

Hi Ross,

Thank you so much for writing to us and chiming in on this topic. I am glad to see a blue heart – there is so much to feel stressed and concerned about. Trying to deal with it as best we can is important, and as hard as it likely was, kudos to you and your wife for proactively doing what you can to eliminate some worry. Keep your faith,…[Read more]

And to you Lorraine! I am thinking of you often, I know poor NY is facing a deep crisis from this. Many I know and love are amidst it in NYC. Thinking of you all. Stay well! Charlene.

Hi @lorraine ,

Thank you so much for chiming in on this topic and letting us know how you’re doing. I am thinking of you all in the NY-area so much!!!! I’m glad to see some green and blue hearts on your “check-in” and hear how you’re keeping yourself busy and strong. As thing worsen, feel free to reach out – we sure are facing difficult times…[Read more]

Hello David, thank you for your kind words. Moderating this forum is easy because our members well informed. What a wonderful experience it is to hear everyone’s story. We are all almost the  same but yet we are experience this awful disease differently. Take care and stay safe! Mark

Hello Joe, 80% of the persons who get covid-19 will only have mild symptoms. In the limited research on patients there has not been fibrosis but rather the disease simulates ARDS where fluid collects in the lungs. Some of these persons may never return to full lung function but some may take a year to return to their full lung function.…[Read more]

Hello Paul, I think our population will be OK during this crisis. Remember we have the experience to get through something like this. Many of us have practiced self-isolation in the past and know how to direct others in the significance of proper hygiene and to stay away if they are sick. I am actually happy my wife doesn’t have to go into work…[Read more]

Hi Everyone,

Thank you for sharing this post with us @lorraine . Please note: I approved this with caution, because while Apple is very good at what they do and their tools are useful in our every day lives; I’d encourage screening tools only from credible health sources like the CDC or World Health Organization (WHO). This is a good r…[Read more]

Hi @lorraine ,

Thank you for sharing this – I would imagine many others will be interested in learning about it! Hope you’re doing well.
Charlene.