I know what you are saying. I first found out in August 2023 that I had Pulmonary Fibrosis. My primary Dr. come in and told me that I probably only had 12 to 18 months and it will be two years in August. I am not any better but not any worst. The way I feel is only God knows when it is time for me to go. I do pretty well and thank God for…

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I was diagnosed in August 2023. I have a runny nose every day especially in the morning. It is so aggravating. I use allergy meds and perscription nose spray. It does not help. My breathing is also worst in the mornings.

Hey JLR, I was diagnosed August of 2023. I get short of breathe very often, but it is worse in the mornings. My pulmonologist has me on 3 different meds that I use in my nebulizer. I have found them not to help. He also has me coming back every six months. I just do not find that the doctors take you seriously even though they told me…

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I was diagnosed with Progressive Pulmonary Fibrosis August 16th in 2023. I was having trouble breathing so I went to the ER. They did a CT with Contrast and found it. When I get up in the mornings I have a terrible time breathing for about 2 hours until I get to moving around and walking. Some how I think all that mess settles in my lungs…

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I was diagnosed Aug. 13th of last year. I went to 2 different doctors and told me I had pneumonia. Then they called me and told me I did not have it. So I had an episode of not being able to breathe. I went to the emergency room and they did a CT with contrast and found Progressive Pulmonary Fiibrosis. The doctor told me then there was…

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I was diagnosed with Progressive Pulmonary Fibrosis in August 2023. I am so sorry for your loss. When I get up in the mornings I am so short of breath, It is really bad. When I try to do things like I use to it causes my breathing to get worse and my heart rate goes way up. My oxygen really does not go down that much. It lowers when I am…

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Could you tell me more about the Concentrator. I have not heard of that or what it does for you.

I am 66 years and have other health problems and my Drs. have not mentioned a lung transplant but that is what I need because I also have COPD and emphysema. My life has changed so much since I was diagnosed Progressive Pulmonary Fibrosis. I can not do things I use to do because I get so short of breathe and my heart rate goes really high. I…

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Thank you so much for your encouragement. I am having a really hard time. So bad in the mornings. I pray and thank God for another day. I had a PET scan on March 1st. It shows lung mass. I have not gotten results from my Dr. yet. My Pulmonary Fibrosis seems to be worst. I have not been on OFEV yet.. I ask God to help you and each and everyone…

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Thank you so much for your encouragement. I pray every morning when I am up at 3 am or before while I sit and struggle to breathe. I am having another CT scan today to find out the progression of my Progressive Pulmonary Fibrosis. I will be going to Winston Salem, NC tomorrow to see my pulmonologist.. I think he will probably put me on Ofev as…

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It helps me to read these comments also. I was diagnosed 6 months ago with Progressive Pulmonary Fibrosis. Has anyone else been told that theirs was progressive. I have such a terrible time in the mornings when I get up. I can hardly breathe and am always up between 1:30 and 4 am. This disease has changed my life in so many ways. Some days I…

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I was diagnosed with Progressive Pulmonary Fibrosis on August 16th 2023. Three doctors have told me this is what is going to take my life. I am using four different kinds of meds in my nebulizer. I have not been prescribed Ofev. I rarely get any sleep because I wake up from 1:30 to 3 every morning because I can’t breathe and I am coughing so…

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Hello, I was diagnosed with Progressive Pulmonary Fibrosis on August 16th 2023. When I first went to the doctors both told me I had pneumonia. Later they got in touch and said I did not have it. I kept having problems breathing and coughing so I went to the ER. They did a CT and found the PPF. The doctor came in and told me I had something new…

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